u/Terminally-Well

Five years ago today, I was diagnosed with ALS (MND).

I reflected on what these five years have looked like.

This blog is an honest update on life five years after diagnosis.

https://terminally-well.blogspot.com/2026/06/five-years-later.html

Hi everyone

If you're thinking about travelling to Japan as a wheelchair user, I recently wrote an honest blog about my experience travelling with ALS.

What worked, what didn't, accessibility challenges, and what I wish I'd known before going.

Blog link: https://terminally-well.blogspot.com/2026/06/japan-with-als-my-honest-experience-as.html

I just posted a new entry on my blog Terminally Well.

This one is deeply personal. I wrote about what happens to a marriage when your partner becomes your sole carer after ALS/ MND diagnosis. The love, the challenges, and how our relationship has changed over time.

Sharing it in case it resonates with someone.

https://terminally-well.blogspot.com/2026/03/the-fine-line-between-husband-and-carer.html

Kia ora everyone,

I wrote a new blog post called “The People Who Carry Us” about caregiving, especially from the perspective of the person being cared for. I wanted to write honestly about what I notice in the people who care for us.

Just sharing in case it resonates with anyone here.

https://terminally-well.blogspot.com/2026/05/the-people-who-carry-us.html