u/clairenicholson22

Hello!

For context, I have hypoparathyroidism which means my body doesn't store calcium properly, and I'm on alfacalcidol which is an active form of vitamin D to help you try and store calcium.

I think I've had it from birth, and I said to my endocrinologist at the first review I had it was great, but exercise fatigue is real... 🤣

... But then I found out I have a ferritin of 13!

So I'm assuming a ferritin level of 13 could absolutely contribute to exercise fatigue...

With that in mind, how have you found exercise with a ferritin at my kind of level?! - anyone managing calcium alongside iron?

Hello!

I have hypoparathyroidism - and best guess is that I've had it since birth - last year, I did 4x 2.03-2.17 calcium (bottom end of normal is 2.2 -sorry I've no idea what the units are!), with PTH somewhere between 2 and 4 (range is something like 1-12)

I have been on 1mcg of alfacalcidol and 2x 1.25g calcium carbonate - which has been great. I said to my endocrinologist basically all great but exercise fatigue is real! - he suggested dropping one of the calcium tablets and going up to 1.5mcg of alfacalcidol.

... Then I had my iron tested - and my ferritin is 13(!)

so now I have no idea what to do next... Do I tackle the calcium, the iron, or both at the same time?! Has anyone been in a similar position?

(I'm in the UK for context!)