Anyone diagnosed living in Oregon, especially Portland Metro area?
Has anyone been through the process of testing, diagnosis, treatment in Oregon? I have searched for Oregon and Portland and OHSU in this group and haven't found any information about testing experiences or recommendations in my area.
My PCP is new to small fiber neuropathy, wants to help and is willing to refer for testing.
The two rheumatologists and two neurologists I have seen have been stumped by my neurological symptoms, but one neurologist mentioned the possibility of small fiber neuropathy and left it at that... it was enough to set me on a path of research though, so here I am.
I know I can ask any dermatologist to do the skin biopsy, but where should the samples be sent? Out of state to a speciality lab, or locally to OHSU? I called a Providence oral oncology clinic that advertises biopsy pathology/testing, but the lady who answered the phone had never heard of minor salivary gland biopsy, but also didn't think there were other oral surgeons within Providence who did what I was asking about.
OHSU might be the only medical system in Portland that does QSART sweat testing, and I am trying to decide how I get access to that, or if I should be flying to Stanford for TST at their dysautonomia clinic.
Any advice would be appreciated. I am concerned about cost of out of state testing, but also concerned about false negative testing and poor healing from someone inexperienced.