u/Greatfawn20003

Cervical dystonia diagnosis in doubt

Hello everyone, i have been getting treated by my neurologist for cervical dystonia for over a year now via botox shots every 12 weeks. I am a little in doubt of my diagnosis. I went to a neuro after a year of neck pain, having seen doctors ranging from orthopedic to ENT.

My neuro diagnosed me with cervical dystonia within less than a minute of meeting me. I came in complaining of constant left side neck+jaw, bone popping at the base of my skull and often a feeling of congestion in the left side of my neck paired with a stuffy nose on only the left side. I also complain of this “crackling” or “static tv” feeling whenever i move my neck

What I DONT experience is uncontrollable movement, muscle jerking or twitches. I do sometimes feel my muscles spasming at the base of my skull but never have any “jerking moments”. I guess i am a little in doubt of my diagnosis and I often feel like im just being sold botox shots (that dont really provide relief). Im curious to know everyones thoughts on this. Thanks in advance for any feedback!

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u/Greatfawn20003 — 8 days ago