u/Griffrose

I’ve heard it’s suggested that for patients with Pots to have ferritin levels above 50ng/mL

I was wondering if this is just hearsay/speculation. Is there any hard evidence.

My gastro doctor brushed off my levels (it’s only at 30) I did mention that it was recommended to be higher due to the pots and they said “well yeah there’s no proof is there? while sort of rolling their eyes” I’m not under a PoTs doctor but I do remember the specialist mentioning it when I got diagnosed.

Gastro department don’t seem concerned about Calprotectin being greater than 2700. They said it’s probably not IBD due to the fact I have chronic constipation.

I had chronic nausea for over 2 years with the only explanation is it’s a psychological condition. Apparently even if I did have IBD that is definitely not the cause of my nausea.

They are doing a sigmoidoscopy just to have a look but don’t expect to find anything. I’ve been bleeding for months and have lost a significant amount of weight due to low food intake. I have pain in my tummy where my bowel is and I’ve been bed bound for half a year now with fatigue.

They are the specialists so it’s not my place to question it but am I crazy in thinking it’s a bit odd? I obviously don’t want to have IBD but thought maybe I had an answer.

Do we think Matt having a beard for S3 is going to be specifically because he’s going to be in prison at the start?

(nothing is confirmed just my theory)

NHS clinic has refused to see me again, I have many complex conditions and fairly certain ME/cfs is one of them. I finally got seen after 2 years of waiting and rejections. The entire 30min appointment ME/cfs was not mentioned once. Apparently I just need to push through the pain and symptoms. I’m bed bound for most of the day.

I’m Autistic and a diagnosis is particularly important for me for clarity, I want to know what I’m battling.