Looking for advice!
Desperate need of advice!!!!!
Hi! I am a 19yr old female college student who has been dealing with sickness for a while. I had long covid in 2021 and have not been the same since. Here are a few things I have been diagnosed with:
\-dysautonomia (pots)
\- adhd
\- asthma
\- raynauds
\- SEVERE facial flushing (derm says it’s KP but it is vascular and very painful)
\- UCTD (as of today)
\- 2/4 positive markers for antiphospholipid antibody syndrome
\- low ferritin
I take
\- adderall
\- plaqenil
\- fludrocortisone
\- nadolol
\- bc
I have seen cardiologists, rheumatologists, you name it. I have been seeing a functional medicine PA for a while, who had me do a stool test and gave me a ton of gut supplements because I had 3 “pathogens” in my gut. My ANA has been extremely high for years (1:1280) and my rheumatologist started me on plaquenil in Jan. I went back to her today and she said I have UCTD. She was but super eager to come up with a plan to treat me or what I can do to get better… but rather just wait for me to get sicker so I can be diagnosed with lupus or something of that nature. She said she cannot diagnose me with antiphospholipid antibody syndrome until I have a stroke or miscarriage. Obviously I don’t want to wait around for that to happen. My functional medicine dr is pretty anti western medicine and wants to me to just stop taking my meds… which I don’t want to do because I will feel like shit. Nobody is really offering me a solution.
I just feel like this is all connected somehow. Every doctor tells me they don’t know what’s wrong with me. I’m just so frustrated and looking for some advice, doctors or treatments that worked for any of you. I am located in GA. TYIA!