Newbie to EPI and desperate.
Hi hi, super new to this whole thing. I’ve read some threads and everyone seems super helpful so I figured I’d give it a shot. Apologies, it’s a long one!
Recently diagnosed with EPI after an assault of tests and finally a low FE coming back to confirm. It took 8 weeks (due to multiple docs telling me it was a gastro bug and being on a million antibiotics that did little to nothing) to get me on Creaon 25000 (one with each meal/snack as recommended by the diagnosing GI doc).
It’s been 3 weeks since starting it, and I’m struggling. A week ago, I tried with eating smaller small meals and therefore going from 3 pills a day to 5 per day, I’m still man-down with constant cramps, extreme bloating, and my stool is either okay or full blown diarrhea. The Creaon has helped marginally. I also had a gastric sleeve surgery 7 years ago, so I already eat teeny meals, and really strictly so as not to upset my stomach. I’ve also been doing as much as I can to stay on top of my stress, but I’m uncomfortable 24/7, none of my pants fit, on top of running to loo after meals and just feeling really, really defeated. I know everyone isn’t a stranger to the costs of Creaon, so this making me panic a little.
I guess my question is, how long should this go on before I feel some improvement? Or will it always be this way and I just need to buck up?
Some advice or even a supportive comment would go a long way for me. Thanks in advance x