r/exocrinepanins

Creon stop working??

Hey all. I started creon a couple months ago. At first I thought it was a miracle. If felt so great. No more diarrhea, oily stools, less bloating. Even my chronic pain was better. For all of like 2 weeks. I am not having diarreah anymo4e but have been having oily stools even after they upped my dosage. I now take 3 36000 creon capsules with each mean and 2 with snack. I still don't have diarr3ah but my poops are quite soft and do have some oil on top and im bloated all the time again. I don't eat high fat. The fatigue is back. At my follow up she suggested a fodmap elimination diet but I just don't know if that's a good idea for me since I have a history of restrictive eating disorder.

Anyone have experience with creon no longer working? I feel like my gi doctor is nice but she doesn't have a lot of answers for me. Idk what to ask for in the next appt since I feel like I'm already on a pretty damn high dose of creon.

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u/Junior_Wear_6875 — 3 days ago

caffeine and diarrhea

anyone has diarrhea and bad reaction to coffee?

i have itching gas from coffee in 15 min after consuming.
it seems like should related to EPI as i have the same with fat when do not take creon/mezym.

it could be “trapped diarheaa “ constipation.
so you are consuming coffee, can’t go to restroom , you are bolied and for go to restroom YOU NEED COFFEE.
and thats rabbit hole

anyone experience?

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u/miracles-th — 3 days ago

For people with severe epi, how many 25000 strength creon capsules do your doctor recommend per 10 grams of fat?

(my fecal elastase was 45 last time) My doctor is saying 2 25000 creon capsules per 10 grams of fat, but I get real bad lower abdominal discomfort when I do that much for just a meal with 10 grams of fat, meanwhile when I try 1 25000 capsule for 10 grams it seems to work better with no discomfort.

Does this sound familiar to people? what is your recommended dose per 10g of fat?

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u/tavlor2 — 11 days ago