Newly Diagnosed & Struggling
I've been battling muscle fatigue for quite a while, but it usually comes in waves after I spend a few days LIVING life and doing the things I love to do. I am struggling now, not just for the fear and anxiety of the unknowns of what this disease looks like for me, but with how to balance living life to the fullest while still maintaining a job.
I have always felt like I was doing something wrong, I would push through a fun weekend or a vacation and then once I finally wind down and the adrenaline (or whatever gets me through the fun) wares off, I have crushing fatigue, muscle tingling in my arms, legs and face. My legs begin to feel like Jell-O and now I end up calling in because I can barely stand up. Unfortunately, people at work know about the things I did over the weekend and will most likely be wondering, "she can do those things, but not come to work?"
So let me first ask, is this a common thing or am I imagining things? If it is common, how do you balance doing the things you love and keeping a job, if the things you love have monstrous consequences. For context, I was outside all weekend, I went to a small town music festival, I went out fishing for MN fishing opener, and played a round of golf. I was fine all weekend, and now Monday morning my arms and legs are so tingly it is borderline painful and when I try to get out of bed, I almost fall over because of the Jell-O feeling in my legs..
Is this the new norm? :-(