u/Harried-Hedgehog4924

My girl has been home for a month now, after 3.5 months in the hospital. She got off oxygen right before coming home, but we have been isolating and masking since birth to try to make sure she didn’t get any respiratory infections and to allow her small lungs to develop as much as possible.

Now that virus season is winding down, I want to de-isolate, as we are going a little nuts, but I am so scared of her getting sick. Its hard to see how the risk-benefit calculation of, say, going to church, makes sense when the consequences could be so dire.

For context, my girl was not premature- she has a congenital condition that results in underdeveloped lungs.

How did other parents of breathing-challenged babies manage after discharge?

I have a 4-month-old that is a bit medically complex (on a feeding tube, was in NICU for a couple months) and am looking for groups where I can meet parents in similar situations. Does anyone know of such a group? I live in West Philly.

My 4-month-old has been home for a month, and while she is the sweetest, most social girl, she doesn’t much like being held. There are some exceptions- she likes being held upright while we walk around lol, but she refuses to sleep in my arms. She seems to prefer her crib/bassinet, so all the cuddles I had envisioned aren’t really happening, and it makes me sad that she doesn’t find being held by me comforting.

My husband and I were with her 12 hours a day every day in the NICU, and we did skin to skin and held her constantly from the time she was 5 days old. She loved it when she was a newborn.

Has anyone else’s little one just preferred not being held?