Did your baby have VSD and how was the newborn stage?
First time parents. We’re just about 30 weeks and found out at around 25 weeks that our baby has VSD and will need surgery after they’re born. This baby has been particularly hard to image as every time we go in for a scan they have their hands over their chest or are in a complicated position, so our plan right now is to do an echo once they are born to determine the severity and when to schedule their surgery. The drs do know based on the location and size that it will require surgery (I know not all VSD requires surgery), but until they can get more exact details on if baby’s VSD includes aortic override or TOF they want to wait to make a surgery schedule.
I know VSD is decently common and many babies tolerate the surgery well and go on to live happy healthy lives. I think for me right now I’m most stressed about the time between birth and the surgery, and keeping baby safe during peak cold/flu/RSV season (due mid/late Sept). We’ve already told family they have to be up to date on vaccines, not showing any sickness symptoms etc. to be around baby. And I know VSD babies tend to struggle to put weight on pre-surgery which makes me nervous about breastfeeding.
I’m just looking for positive experiences and any encouragement from other VSD parents. What your surgery timeline looked like, how life pre-surgery was, how recovery went etc. Just trying to get a picture of what newborn season will look like for us.
Regardless we are so thrilled to have the sweet baby and to care for them no matter what the season looks like, they are a very strong kicker and let me know multiple times a day they are doing just fine in utero haha