thoughts - advice - tips
Different pictures of my hands and feet recently over the past few months. Hands were fine until I had a full body skin breakout where my body had red blotted skin everywhere and was extremely flaky. That was early February. Since then I have been on a cycle of my hands being quite bad for 2-3 weeks and then good and normal for a week.
I also have crohns and juvenile arthritis.
Was on Humira and everything seemed fine, but stopped as dermatologist and other doctors thought it was a drug reaction when I had the full body rash.
Am on stelara now but have not seen much results if any.
Trying to get approval for tremfya, but it is not approved for crohns patients under 18.
Besides that I have taken prednisone and roflumilast pills orally to help with skin but have not seen much help. Am also using clobetasol and triamcinolone ointments for hands and feet which work pretty decent short term. Doing UV light phototherapy as well.
Today I started cyclosporine for the first time and have seen great results from what i’ve seen online.
Wondering if anyone has been in a similar situation, has any advice as to what to expect on cyclosporine, or anything that could help.
One thing of noted is how much the condition of my skin has begun to affect my mood. My parents agree that the I haven’t seemed the same since everything has gotten worse. Hoping things get better and looking forward!