r/Psoriasis

The constant big flakes following you everywhere. I can handle it on my torso, trunk, and extremities. I'm required to wear a dark shirt at work. So I'm constantly brushing off my shoulders. The flakes are in my vehicle. Apologizing to the barber every month at the snowstorm that's about to occur when she grabs a comb. Constantly thinking about it. 10 years of this. However, there's hope. I saw a dermatologist recently, and I got my first dose of skyrizi September 29th. Just wanted to vent. Thank you all.

Can anyone tell me which things i should add to my diet to ease my flare ups and reduce the itching?

My physician has advised me to completely cut down dairy products, bakery products, Bananas, gram flour, Brinjal, Tomato, peanuts, Almonds,mangoes, pickles and anything sour - which has citric acid. Even potato, ofc no oily and highly processed food.

Physician also added Vit A, Vit B12 supplements in my medications and recently gave me Vit D3 shots drink (to be taken one shot/10 days).

Gave me Becmat lotion and SALIKETO shampoo for application with some tablets and LIVCON TH for liver health and improvement of Digestion.

I'm a pure vegetarian so no to eggs, meat was already a Yes.

So a highly restricted diet already but I wanna add some nutritious things in my diet to improve my whole digestion, immunity and also gut health which will eventually help me reduce my flare ups but also something which has anti inflammatory properties.

Drop down some suggestions, Thank you!

[Also some snacks which i can have without actually triggering my flare ups :) ]

I've struggled with severe scalp psoriasis, and after trying a lot of things, here's what actually worked for me.

I'm sharing in case it helps someone else.

What made the biggest difference:

Vitamin D supplements. This was the biggest change for me. In my experience, the dose that works can be fairly high and different for each person, so please get your vitamin D level checked and talk to a doctor before taking high doses.

Protar-K Solution (100 ml). A medicated scalp treatment by Percos India with ketoconazole (2%) and coal tar (4%). It's used for severe dandruff, seborrheic dermatitis and scalp psoriasis.

Ultitar CS Lotion (100 ml).

Using these three together, my scalp stayed completely clear for many months. The psoriasis came back after a year or two. When I went back on vitamin D alone, it helped, but not as much as when I used it together with the shampoo and lotion.

I also tried other coal tar shampoos with a lower concentration, but they didn't work for me.

Things that helped a little:

1.Olive oil shots after meals

2.Hydrolyzed collagen

3.Coffee in the morning

What I avoid (these made my flaking much worse):

1.Oiling my scalp with any kind of oil

2.Highly processed food

3.Meat cooked with heavy masala/spices

Important: This is just what worked for me, and everyone's body is different. Please see a dermatologist before using vitamin D supplements, medicated shampoos or lotions like these.

I am considering MTX because topicals are becoming more expensive with little possibility of long-term remission. For those who have taken or have been taking MTX in their 30s, how are the side effects? Also, if it fails or I experience side effects that I am prompted to stop, will my lesions come back at a worse state? Can I switch back to topicals?

I am using Daivobet ointment quite sparingly for my whole body. However, even so, my doctor is against my usage because the lesions are distributed all over my body / localized even though my psoriasis is guttate.

So I've had severe chronic Psoriasis for years and have been on Humira (biologic) to control it for more than a decade. I live in Texas and it's manageable... not clear by any means... but I don't want to take a long walk off a short pier either.

So I'm planning on relocating to NH (upper valley) soon and I'm looking for anyone who can tell me how your psoriasis reacts to that environment.

Thanks.

I'm not sure how best to word this, I can post photos but I'm not looking for medical advice, more just people's experiences and what those with more experience do. So I've been diagnosed with "psoriasis" and even though no one has ever said the word, I'm quite confident it's guttate psoriasis. It's been about four months and I'm about half way through a four week course of a couple creams that make me feel and smell like a slug that lives in an abandoned coal cellar.

Anyway so they told me to use the creams until the spots are "completely healed" but I'm autistic and I don't know if MY definition of completely healed is the same as theirs, and I don't really want to go and pay for an appointment just to look at hundreds of individual spots and tell me if they still need the cream or not. I will if it's really needed, and I intend to go back at the end of the four weeks to ask more questions anyway, hence not asking for specific medical advice. There are definitely some that still look red, raised, dry or scaly. Obviously they still need it. But others are flat and feel smooth although are still slightly discoloured. Some are almost entirely faded but are still visible.

How do I know if it's leftover hyperpigmentation, residual inflammation or something else? If I stop the creams and it's not healed will it come back just in that spot or spread elsewhere? Do I just keep going until the skin looks completely normal and clear? I'd really like to hear from people that have dealt with this longer than I have, how do YOU know when it's okay to stop using the creams?

Perhaps this disease isn't life-threatening or a risk to human survival, so no health organization or government is particularly keen on researching a specific cure. I often think that if it were easily transmissible through contact, the world would have found a cure ages ago—lol.

My mom struggled with plaque psoriasis for years. Covered her scalp pretty completely with large patches on upper arms and other areas. After failing therapies she first went on Humira back in 2010 or 2011. She had some side effects that we believe were Humira related and after a while, she ended up on Stelara. She has been on Stelara with great results! for 10 years.

But...we have started to look at her medicare drug options and so far, Stelara is coming up as not on the formularies. (I even tried using the drug name ustekinumab.) Now, it is always possible for things to change before open enrollment starts, but...

Anyway...alternatives such as Skyrizi, Tremfya, Starjemza are listed on the formularies.

Has anyone switched from Stelara to one of these? How did it go?

Luckily mom does have an appt. with her doctor in early November, so she can talk to her doctor before open enrollment ends. So that is a piece of luck!