1 year with palmoplantar psoriasis and I'm done
Suspected palmoplantar psoriasis, diagnosed at a university clinic in Germany. Started over a year ago. First they thought it was fungal and gave me antifungals. Never got a biopsy or scraping to this day, so officially it's still just "suspected". Fun.
Since then I did everything by the book.
Antifungals at the start, did nothing. Then mometasone for over 4 months, worked while using it, all came back worse after stopping. Tried Wynzora, my skin reacted badly so we stopped that too. Then the university clinic gave me a proper protocol. Salicylic acid 5% every night to descale, cotton gloves and socks while sleeping. Then calcipotriol daily for weeks. Now tacrolimus alternating with the calcipotriol. On top of that urea creams, Cicalfate, CeraVe, liquid bandage for the cracks. I even bought a narrowband UVB lamp with my own money because clinic phototherapy 3 times a week is impossible with a job and a kid.
Result after a year of this: skin cleared once, came back during active treatment. Now it's spreading. My second foot got a fresh plaque this week while I'm literally mid treatment. New spots on fingers that were never affected before.
And the doctors? Everyone says something different. My GP refused to prescribe anything. My private derm doesn't even agree with the clinic's protocol, says tacrolimus is off label for psoriasis. The clinic works in 3 month cycles and you can't reach anyone in between. So basically I'm managing a multi phase treatment plan alone at home.
I know it's chronic. I know there's no cure. I know biologics exist somewhere at the end of a bureaucratic tunnel of "documented topical failure".
Honestly I'm fed up and really close to just quitting every treatment. At least then I know where I stand. It won't heal, fine, but no more false hope every single evening with the gloves and the creams and the waiting.
Anyone here who just stopped everything? What happened?
TL;DR: 1 year of suspected palmoplantar psoriasis (never confirmed with biopsy). Tried everything: antifungals, 4 months steroids (rebounded), Wynzora (reacted), salicylic acid, calcipotriol, now tacrolimus, plus a UVB lamp I bought myself. Skin cleared once slightly, came back mid treatment, now spreading to new areas. Doctors all disagree with each other and I'm managing this alone between 3 month appointment cycles. Ready to quit all treatment. Anyone just stopped? What happened?