Anyone stop taking Skyrizi? Did your psoriasis come back? Did restarting work again?
I've been on Skyrizi for about 3 years now. My psoriasis has only ever been on my scalp, no joint pain or other areas involved. Curious to hear from others who've paused or stopped it (insurance issues, side effects, wanting a break, etc.).
A few questions:
- How long were you on it before stopping, and how long did it take for symptoms to return (if they did)?
- Did the flare come back as bad as before, worse, or milder?
- If you restarted Skyrizi after a gap, did it work as well as the first time, or did you notice reduced effectiveness?
- Roughly how long was the gap before you restarted?
Also curious — has anyone tried stretching out the interval between doses instead of stopping completely? Like going from every 12 weeks to 13, then 14, then 15, etc., pushing it out a bit more each time rather than cold-stopping. Did that work okay, or did symptoms creep back once you went past 12 weeks?
Part of why I'm asking: I don't love the idea of being dependent on a medication long-term, and I'm a bit wary of staying on an immunosuppressant as I get older (infection risk, whatever else comes with aging on a drug like this). So I'm trying to figure out if there's a realistic path to less frequent dosing, or if that's just wishful thinking for how this drug works.
Trying to get a sense of what's realistic before I consider changing up my own dosing. Appreciate any experiences you're willing to share.