u/Heavy_Tear_7387

عسلامة،

دقيقة من وقتك تنجم تكون سبب في إنقاذ حياة إنسان. ❤️

اليوم حبيت نحكيلكم على قصة صديقي إيهاب، عمره 23 سنة، واللي من عمر 4 سنين وهو يحارب مرض نادر اسمو Hyperoxalurie Primitive Type 1.

المرض هذا دمّر الكلاوي متاعو بالتدريج، ووصل بيه لمرحلة قصور كلوي مزمن. اليوم يعيش بين تصفية الدم (Hémodialyse) والتصفية البريتونية (Dialyse péritonéale)، وما عادش يعرف نهار من غير علاج. وفوق هذا يعاني من فقر الدم، وآلام في العظام، ونقص في الكالسيوم وفيتامين D، وارتفاع في الفسفور، ومشاكل في القلب، وحتى الكاتيتار متاع الدياليز تعرّض للإلتهاب.

رغم التعب والأوجاع، مازال متمسك بالأمل.

الأمل هذا يتمثل في دواء Lumasiran اللي ينجم يحدّ من تطور المرض، لكن للأسف CNAM ما منحتوش التغطية اللازمة لهذا الدواء، وهو دواء أساسي وضروري في علاجو. وزيد على هذا، الدواء غالي برشا وماهوش موجود في تونس، ولازم يتجلب من الخارج.

وزادة، بالنسبة للعملية، زرع عضوين مع بعضهم (الكبد والكِلية) ما هوش ممكن يتعمل توّا في تونس. لذلك هو موجود في قائمة انتظار لزرع الكبد، أما بما إنو جسمو ولى ضعيف برشا وحالتو معقدة ومتقدمة، فهو موش من الأولويات في الوقت الحالي.

لهذا السبب، هو تواصل مع Croix Rouge Française اللي تنجم توفر المساعدة اللازمة كي يوصل لفرنسا، إذا يتحصل على الترخيص والسماح بالسفر للخارج باش يعمل زرع العضوين.

المطلب اليوم واضح ومهم برشا:

- مساعدات مالية وتبرعات باش ينجم يواصل علاجو ويوفر الدواء.

- بارطاجي المنشور وخلّي القصة توصل لأكبر عدد ممكن من الناس.

- نداء للمسؤولين في CNAM ووزارة الصحة باش يراجعوا هالحالة الخاصة، ويعاونو في توفير العلاج واستكمال الإجراءات القانونية اللازمة للسفر والتداوي.

إذا ما تلقاش المساعدة، يبقى من غير دواء، وما يبقاش قدامو كان مسكنات الوجيعة والدياليز بشكل متواصل، بينما المرض يواصل يتقدم.

إذا ما تنجمش تتبرع، بارطاجي المنشور. يمكن البارطاج متاعك يوصلو لإنسان يكون سبب في إنقاذ حياتو.

كل دينار، كل بارطاج، وكل دعوة... تنجم تعمل فرق.

هذا ال rib للي ينجم يعاون :

Iheb Jemai: 25128000000157714791

D17: 93593037

هذا رقم الواتساب:

29 561 808

ربي يجازيكم بكل خير ❤️🤲

I need to ask a huge favor. Please don’t scroll past this. I’m trying to save my friend’s life.

It feels completely surreal to even type this out, but I am desperate. My close friend Iheb is only 21 years old. While most guys his age are thinking about their futures, he is trapped in a hospital bed here in Tunisia, fighting a rare genetic disease called Primary Hyperoxaluria Type 1.

The disease has completely wrecked his kidneys and is putting a massive, dangerous strain on his heart. Right now, the only thing keeping him alive is grueling, painful daily dialysis—but that’s just a temporary band-aid to buy him time. His only real chance at making it through this is a combined liver and kidney transplant.

Here is the heartbreaking part: the specific medication he needs to stop the damage (Lumasiran) isn't available in Tunisia at all, and local state insurance won't cover it. We are fighting tooth and nail to get him medically transferred to a specialized hospital in France, and we’ve been trying to push through a mountain of paperwork with the French Red Cross (Croix Rouge Française).

We started a fundraising campaign to try and cover the insane medical and transit costs, but his family and friends just cannot do this alone. The numbers are too big, and we are flat-out running out of days.

If you can do anything at all, please:

Donate if you can: Even the price of a coffee helps. Every single bit goes toward getting him the care he needs to survive.

SHARE THIS: If you can't donate, please hit share. A single repost or tag could put this in front of a medical charity, an NGO, or someone with the power to pull the right strings and get him into a French hospital before it's too late.

All of his official medical reports from Hôpital Mongi Slim are fully verified and transparently posted on the campaign page.

Please help me save my friend

Thank you from the bottom of my heart. 💔

GoFundMe link: https://www.gofundme.com/f/save-iheb-jemai-a-22yearolds-urgent-fight-for-a-double-t?utm\_id=97760\_v0\_s00\_e0\_tv4

I need to ask a huge favor. Please don’t scroll past this. I’m trying to save my friend’s life.

It feels completely surreal to even type this out, but I am desperate. My close friend Iheb is only 21 years old. While most guys his age are thinking about their futures, he is trapped in a hospital bed here in Tunisia, fighting a rare genetic disease called Primary Hyperoxaluria Type 1.

The disease has completely wrecked his kidneys and is putting a massive, dangerous strain on his heart. Right now, the only thing keeping him alive is grueling, painful daily dialysis—but that’s just a temporary band-aid to buy him time. His only real chance at making it through this is a combined liver and kidney transplant.

Here is the heartbreaking part: the specific medication he needs to stop the damage (Lumasiran) isn't available in Tunisia at all, and local state insurance won't cover it. We are fighting tooth and nail to get him medically transferred to a specialized hospital in France, and we’ve been trying to push through a mountain of paperwork with the French Red Cross (Croix Rouge Française).

We started a fundraising campaign to try and cover the insane medical and transit costs, but his family and friends just cannot do this alone. The numbers are too big, and we are flat-out running out of days.

If you can do anything at all, please:

Donate if you can: Even the price of a coffee helps. Every single bit goes toward getting him the care he needs to survive.

SHARE THIS: If you can't donate, please hit share. A single repost or tag could put this in front of a medical charity, an NGO, or someone with the power to pull the right strings and get him into a French hospital before it's too late.

All of his official medical reports from Hôpital Mongi Slim are fully verified and transparently posted on the campaign page.

Please help me save my friend

Thank you from the bottom of my heart. 💔

GoFundMe link: https://www.gofundme.com/f/save-iheb-jemai-a-22yearolds-urgent-fight-for-a-double-t?utm\_id=97760\_v0\_s00\_e0\_tv4

I need to ask a huge favor. Please don’t scroll past this. I’m trying to save my friend’s life.

It feels completely surreal to even type this out, but I am desperate. My close friend Iheb is only 21 years old. While most guys his age are thinking about their futures, he is trapped in a hospital bed here in Tunisia, fighting a rare genetic disease called Primary Hyperoxaluria Type 1.

The disease has completely wrecked his kidneys and is putting a massive, dangerous strain on his heart. Right now, the only thing keeping him alive is grueling, painful daily dialysis—but that’s just a temporary band-aid to buy him time. His only real chance at making it through this is a combined liver and kidney transplant.

Here is the heartbreaking part: the specific medication he needs to stop the damage (Lumasiran) isn't available in Tunisia at all, and local state insurance won't cover it. We are fighting tooth and nail to get him medically transferred to a specialized hospital in France, and we’ve been trying to push through a mountain of paperwork with the French Red Cross (Croix Rouge Française).

We started a fundraising campaign to try and cover the insane medical and transit costs, but his family and friends just cannot do this alone. The numbers are too big, and we are flat-out running out of days.

If you can do anything at all, please:

Donate if you can: Even the price of a coffee helps. Every single bit goes toward getting him the care he needs to survive.

SHARE THIS: If you can't donate, please hit share. A single repost or tag could put this in front of a medical charity, an NGO, or someone with the power to pull the right strings and get him into a French hospital before it's too late.

All of his official medical reports from Hôpital Mongi Slim are fully verified and transparently posted on the campaign page.

Please help me save my friend

Thank you from the bottom of my heart. 💔

GoFundMe link: https://www.gofundme.com/f/save-iheb-jemai-a-22yearolds-urgent-fight-for-a-double-t?utm\_id=97760\_v0\_s00\_e0\_tv4