My five year old has fallen off her growth chart and has a very limited pallet. She has four meals she’s willing to eat: penne pasta, roti, pizza and chicken nuggets. Because of her pickiness I’ve always made her separate meals.
Her pediatrician originally suspected ARFID and referred us to GI. Fast forward 8 months and they said nope she’s totally fine just small. Add miralax and see you next year. My husband pushed back asking for labs bc he’s concerned of deficiencies.
The doctor took that as a thyroid panel and these. Her blood was drawn Friday morning and these results showed up Saturday morning and the GI didn’t call us until Thursday. They wanted to know if we’d like to do biopsy. And said they’d explain everything after. We went ahead and scheduled for their soonest which is June 18th.
We didn’t suspect Celiacs at all and don’t have any known family members to have it. From what I’ve searched these results are indicating she’s having a very strong response to gluten.
We’ve had toileting issues where she sharts at school and wets the bed constantly. She’s grown 1.5” in two years, she’s gained ~5lbs since she was 3. She has had a distended belly since she was an infant and everyone told me I was overreacting for thinking something was wrong.
I guess I want to know if these tests can indicate the severity of the damage to her small intestines? Is making her wait 8 weeks and increasing her gluten intake really the right thing here?
My husband and I have already determined we’re going to make our entire home a gluten free zone. What were some unexpected misses people have made when making this transition? I’m really nervous about the potential tension this will create between her and her older sister because we already adjust so much of our lives around the 5 year olds cold and idiopathic urticaria which surfaced fall of 2024. This was our first winter knowing what was causing the hives.