u/Honest_Statement3447

We have cared for our loved one at home for the last several years, with the last year being especially difficult as the dementia has advanced to a stage where our loved one does not recognize home, is frequently agitated, is not sleeping during the night and is incontinent. We managed as best we could with the assistance of hospice and home healthcare for several hours a day, but overnight has really become difficult. To compound issues, we also have a recent diagnosis of advanced stage 4 cancer for the primary caregiver. All this said, hospice recommended we transition to a memory care center. So we located one near the house, but they did not have immediate availability. Hospice suggested they would take our loved one for a respite stay to bridge the time until the bed was available at memory care. Memory care evaluated our loved one on Tuesday and said they would need the highest level of care. We agreed. Yesterday they transferred our loved one to memory care and within an hour, called and said they could not keep them because they are end of life. Hospice pushed back and said they accepted them, and the care plan indicated they could provide the care necessary. A few hours passed and now hospice is sending in care givers to get him through the night and will transport them back to their respite center for end of life care. All of this is so shocking, but what we're really having a hard time grasping is how did this happen? How did hospice who has been caring for him for 8+ months recommend this place that clearly is not equipped to care for them and why did the place evaluate and accept them? The hoops we have jumped through to arrange this place only to now back out is just compounding our grief. Hospice has been great for the last several months, but this last week has been so bungled that we feel almost betrayed.