CF Fundraisers - how does it work if you have CF?
Hi all,
I am 46 with CF and as most of us know, I was a child in the era before cross infection was a "thing." When I was a little girl, my parents took me to CF fundraisers and I remember meeting lots of little kids with CF.
When I was old enough to understand what CF was and the implications of it, I wanted nothing to do with it and didn't want anyone to know. Once the 6 foot rule came into play in the 90's I became even more scared and ashamed of my CF. My family stopped going to CF fundraisers and I never went to one ever again and never saw those CF kids ever again either.
I see pictures of people attending outdoor fundraisers. How does it work? Are we invited? Are we not invited? I understand that some events don't allow people with CF or if they do only one person may attend. I have heard about wearing T shirts etc.
CF folks, how is it going to outdoor CF fundraisers if you have CF? Do you feel singled out or afraid? Do you have to wear a T shirt? Is it scary? How do they handle cross infection? Do you wear a mask? Or is it empowering?
I am now much more open about my CF to my friends and community, but I am ashamed to admit I am still too scared to go to a public in person CF event, but it's an area I'd like to work on in upcoming years, especially because I have a toddler (no CF) and I want her to not be afraid.
Thanks!
--46 F with cf