So for some context, I was diagnosed with POTS when I was 22 years old and it was a rare condition. I don’t think I’ve ever been to a cardiologist, maybe during a stress test around that time? But no regular specialist. I got diagnosed by a neurologist who has retired and I only went to him because of nerve flare ups because I had Bell’s Palsy when I was 17. His advice to me at the time was to drink a Gatorade a day and have some crackers. Obviously, that adjusted over time to me drinking actual electrolytes and carrying around small camper salt shakers to take salt shots in the summer. I don’t normally have heart flare ups. I was a swimmer when I was diagnosed so I hit the pool and now I’m working on land lifting over 5 tons a day 3 days a week for my job. I’ve managed fine on my own for over a decade and have only ever had a pass out level episode when I did the tilt table test again over a decade ago. I see there are many advances in medicine as I’m reading through this forum and I should make an appointment with someone that knows what other areas this could be affecting my body. I have also noticed my dizziness increasing this year due to warm weather (I shaved my head, helped a bit) but I want to nip it in the butt. So my question is..
Who do you even go to manage this if it affects multiple bodily functions? One specialist per problem or is there like one doctor that just understands this “condition” and can kind of navigate the whole range of stuff? I had no clue it was linked to so many other things and I want to do what is best for my body and as soon as I ca work behind a desk I’ll definitely try the corset because I feel like abdominal compression might help me a lot. Again, didn’t even know it was a thing. I’ve basically managed myself to the best of my ability and will powered through the rest of it but I am getting older and I feel like I’m deteriorating a little bit. Not like I was when I was diagnosed. But, I can tell it’s not just age. Any advice would be great!