Recovery after 20 yrs deficient (folate, B1, B12)?
I'm homozygous for C677T. Used to have homocysteine in the mid-40s. Recurring folate deficiency. Previously B12 deficient and B1 borderline. I'm young, about 30. Cognitive issues would suggest I've had this since childhood, ~20 years.
Been dealing with a lot of bullshit. Profound cognitive issues, dysautonomia (mostly bedbound 2-3 yrs), ataxia, oscillopsia, phantom smells (cigarette smoke mainly), headaches, dizziness, vertigo, bunch of other shit. I could write a book. I've basically had to check out of life for the last 10 yrs.
No one tests for these deficiencies. I only found out because I've been in and out of specialists' offices and one of multiple neurologists was so puzzled by my presentation she had the decency to run a million labs rather than try to convince me this is all in my head which a lot of incompetent asshole *doctors* love to do (I'm sure many of you can relate). What a complete farce.
Good news: I seem to be slowly getting better since supplementing. Emphasis on slowly. It's been 4-5 months now. More consistent energy. Very little dizziness/vertigo. I've heard significant cognitive and autonomic improvement can take a couple of years. I don't expect to make a complete recovery to some hypothetical version of me that never got ill. I just want to be functional within reason.
What I'm ultimately interested in is hearing from people who've been down this road. If you were similarly debilitated, what did your recovery timeline look like?