TSW; dermatologist went to a recent conference and it was concluded that TSW was not scientifically proven to occur from over steroid use..
I'm not really happy with my dermatologist but I'm not sure if it's because of her age (she's retiring soon apparently) or if all derms are like this. Unfortunately she's the only one in my state. The mention of TSW not being caused by steroids occurred in my second appointment with her.
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My first appointment was in person around the end of last year. My skin was so bad as I had no skin barrier around parts of my face and I was so sore and sensitive to everything. She basically wanted me on dupixent but I have so much hesitation around it. The only thing she offered in that appointment was steroid cream or dupixent. I basically came out of it with the same steroid cream I had been given going into it.
That didn't work so I stopped the steroid cream as it wasn't helping as I've been trying it on and off and it never helped at any point in journey with ezcema (I had a bad case of eczema as a kid and then nothing for 16 years until a year or two ago when it came back and worse than before). I switched and tried this pharmacist skin barrier cream and it was a life saver 👌🏻. It took a month and a half but I finally got the majority of my skin barrier back for the first time in around 5 months. It's been a very slow healing journey reintroducing moisturisers and skin care I used to use for most of my life prior to this flare up.
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My second appointment was a phone appointment with my derm. I brought up TSW as she was prescribing an even stronger steroid for my skin. She then scoffed and said I had been googling too much and mentioned that she just went to a recent conference for dermatologists where TSW was discussed and they mentioned that it's not scientifically proven so it's not something that actually is caused by steroid withdrawal.
I'm a bit taken back and I'm not sure about my derm for that and other reasons like her getting frustrated with me when I asked where I should put the steroid cream on around my eyes as I wasn't sure if it was safe to put it under my eys. She was like 'come on now I cant tell you where to put it just wherever there's redness'. In my head in thinking you better damn well tell me as I'm paying you out of pocket and this isn't a cheap meeting 😐
I have Asian skin so I have some darkening of the skin around my eyes from a past flare up and me constantly rubbing around that region and she mentioned that it's hard to see the redness because of my skin tone but basically I have to put it on my forehead, side of my eyes and under my eyes but the only actually red spot and thickening of my skin is under my nose and above my mouth.
So I have to use the steroid that's stronger than advantan fatty ointment for a single week and then drop back down to the one my GP had me use for flare ups which was the 1% steroid (so much weaker than the advantan and weirdly I saw more results on it 🤷🏻♀️). She tried to tell me to go on the advantan and even forgot I had been on it leading into my first appointment.. but I've told her I've been using it for most of my life at diff stages and it's never worked so now she's putting me on a stronger one for a short period of time as I told her I don't want to use the advantan.
My next appointment is for an in person appointment.