u/Icy-Street3771

I don’t feel independent anymore. I used to feel free, like I could do anything, go anywhere, and just live a regular life. With having this, I seem to always need someone around me. I could be doing great for a while and then out of nowhere, a seizure happens. It’s unpredictable. With all that being said, how do the solo people with epilepsy feel safe? Or does everyone make sure they live with others/have a partner? I’m a single mother so my kids are who look out for me. Eventually though, they will be adults. Down the line, I do hope to find a forever partner, but currently it isn’t a priority. I just wonder if being alone with this condition is realistic.

So everyone at my job is aware of my condition. It’s for good reason, since i wouldn’t want anyone to not understand what’s going on with me. I’ve worked jobs where no one was aware(I didn’t want anyone to feel I was a walking hazard or something). Anyway there’s an older lady who watches me. I come in and she always asks me if I’m ok. I’m usually pretty good, but I have my mornings where my body and brain have to get in the groove of being at work. I could have had a long night, bad sleep, or whatever, but I made it there. My mission is always to get through the work shift. Anyway, today and other days, she said, “you don’t seem like yourself, I’m just making sure you took your meds and won’t have a seizure.” I have NEVER actually had one at this job. Today though, I had to “stop” myself from having one. Her eyes were on me the whole day. My brain was playing tricks on me. Making me wonder if I would. I hated the feeling. Anyway, I felt better once other people came in. They weren’t concerned about that. It was normal once they were there. So I plan to have a talk with her. I don’t like it to be brought up, or else it’s on my mind. I don’t like the fact that she makes me feel uncomfortable. Am I overthinking this?

It is that time of year now to deal with HS and warm weather. During this time, I get some of the worst flares from the heat. I mean I deal with this year round to some extent since my body sweats. But when it’s hot outside, it’s horrible. I’ve had this condition since I was 12 and I’m 39. It’s not new to me, but I still haven’t figured out a lot of things. It’s like I’m testing out anything to help me. What are some things you all do to control the extra sweat and warmth? My horrible area is under my breasts and under my arms. Any advice?

The title says it all. I have been seeing a lot lately about popping boils with needles. Supposedly “sterile” needles. Being that I’m not a doctor I’d never try this. Is this what people do now? If so, what do you do afterwards? What do you put on the area? I guess I’m just curious to know this. It’s not that I’m willing to try(too scared that I’ll make things worse). It seems that’ll cause so much more pain or problems. I get the worst boils you can imagine, but my relief is hot compresses, pain meds, and loose clothing. I’ve also noticed when I drink a lot of water, things get better too. I have come to believe it’s my diet causing most of my issues.

I started eating once a day without trying. It is just something that has happened based on my schedule. I work and have children. I eat breakfast/lunch(based on the time that I eat, it could be considered either one). The kids go to school while I’m at work. Once I get off and they are out of school, I make them dinner. By the time dinner is done and they eat, I’m not hungry and I’m not even able to force myself to eat. Weekends are a little different though, I’ll eat twice on weekends. Is eating once a day bad for our body? Anyone else experience this?