Nervous System Disregulation, Symptoms Getting Worse
I have POTS. At first it was just when I stood up too fast, I'd sometimes pass out or temporarily lose my vision.
Well I won't even get into the other health issues because I don't know where to start, but I have so many health issues. I lost my good job in January and since then, I haven't been able to afford healthcare. Heck, I can barely afford to keep a roof over my head and already have so many medical bills sent to collections, my credit is fucked.
And in the last few months my health has been deteriorating faster and my symptoms are getting very severe and I'm scared. I have this weird exaggerated startle response in my brain. If I'm walking and change directions too fast or there are any sudden sounds or movements around me it feels like I jumped in momentary panic and shock but the sensation is only in my brain, I don't actually jump. This even happens when I'm washing dishes and the sound of when I stack the plates makes me startle. When I'm in the grocery store and come around a corner and a person is walking in front of me, I startle. When my daughter says "Mommy" too loud I startle.
I've also been having seemingly random spells of extreme light sensitivity. One time this happened while I was driving. It was a really bright sunny day but I was doing just fine until suddenly, instantly the light became unbearable to my eyes. I tried fighting to squint my eyes open so I could see, and tears poured out of my eyes excessively. Luckily it was a downtown road where traffic is suuper slow but I was forced to stop in the middle of the road until I was able to see enough to pull over into a parking lot safely. This has been happening more and more often but now I'm much more prepared with good sunglasses anytime I drive and have a plan and it hasn't happened again while driving so far.
And I feel exhausted and numb all the time. Like I'm not a real person, just watching myself continue to do things. I am so exhausted, overwhelmed, and I have a hard time caring about much of anything. I'm putting in way less effort at work than I'd usually do, I don't reply to anyone's messages, I have no will to participate. Life is feeling like an endless ongoing story of lies and pain. I'm starting to think every employer is fucked up and doesn't care about their employees' wellness. I could continue working myself past the point of exhaustion but I still couldn't even afford healthcare. What's the point when I get nowhere no matter how I try.
Even though I have this sense of carelessness I am scared of what is happening to me and how hopeless I feel. Wondering if anyone's experienced similar and if they were able to change things.