u/ImaginaryVersion1734

Recap: On Monday I woke up from my nap to a fever. When I checked my port site I realized there was yellow discharge coming out so I promptly went to ER to manage my infection.

After 3 days in the hospital, the blood culture came back negative for bacteria! CT came back good as well. It only showed inflammation around the port site. Also the echo came back good. Just some tachycardia. This is good because this means I get to keep my port. So I was discharged Wednesday night!

Only downside is I’ll be delaying treatment for a week. They want my port to fully heal before I start treatment , so I’m on antibiotics till then. Overall, I consider this a win.

Hi everyone, I’m at ER currently. Realized after nap today my port was infected (there’s puss) and I started developing a fever. Once I got to ER they said my temp is 100.1 F. I’m a bit scared and bummed out.

Initially I had plans to shave my head today and eat my last sushi before chemo. Wanted to shave my head so I can lose my hair on my own terms. My mom is supposed to make it into a wig for me. I’m supposed to start chemo tomorrow but now I’m not sure that’s still happening.

This is my first set back in treatment. I had advocated to have it looked at three times. There was no puss at the time but knew something was wrong. My neck took like 5 days to heal, but my port was still “healing”. Got the procedure done April 28th.

Does anyone have any stories similar to this? unfortunately i can’t give anymore answers than this because my ER is at max capacity. I’ve been here for 3+ hours and I’m still waiting for bed :(

I know I did everything I could to catch a complication as soon as possible. It’s just disheartening to know I may be delayed treatment or worse, may have port removed and replaced.

Hi Everyone! Just got diagnosed with de novo stage 4 TNBC on May 7th. I just had my lung biopsy May 4th to help determine my staging. On PET scan the lung nodules were too tiny to determine if cancerous or not so I had to unfortunately undergo a noninvasive procedure. Good thing is that I’m finally back to normal, and going on walks. I’m not really in any pain rn thanks to the norcos and motrin🙏.

I start chemotherapy May 12th where I’ll do doing
Keytruda/carboplatin/paclitaxel + Neulasta for 6 cycles. Then I’ll switch to PARP inhibitors and do immunotherapy for maintenance after chemo.

Just want to share my story, and see how other survivors with de novo TNBC are doing. So far I’ve been hearing some good stories about some people going onto live 5,10, and even 15+ years with this condition. I think I just need some motivation before I start chemo.

Currently in the process of getting a second opinion , and hopefully I can get my hands on a clinical trial at the City of Hope . I have high hopes as of right now, but all is still uncertain.

Hi Everyone! Just wanted to share some good news. I had my egg preservation procedure today and in total my fertility specialist collected 33 eggs. Of those 33, 22 are optimal length and are now frozen! I’m so happy. Definitely makes my odds a bit better since I want at least 2 kids (i want 3, but we’ll see what happens)

Just a big win in dark times. I have my lung biopsy on Monday to determine staging, so I hope some more good news is on the way🙏