So I go to a vulvar specialists, she told me that if treatment doesn’t work within 2 weeks for a flare then treatment needs to be reevaluated and this goes for when you first start and any future flares. Then once symptoms are gone go back to maintenance treatment. I’ve never heard of this before, does anyone else’s doctor take this approach?
What do you think personally causes your Ls? Why do you think it mainly attacks the private areas? Do you think we’ll ever know for sure?
Hi, I just started using clob ointment and estrogen cream (on inside and outside) I’ve noticed I’m burning and sore a lot, I’ve only been using for about 10 days. Before I only had symptoms in one area. Is this a due to my skin getting used to the treatments or should I be concerned?
Hi everyone, I literally just created this account to post but I have been lurking and reading posts since diagnosis 2 weeks ago not confirmed via biopsy but bc I had redness and very minor fusing which I was pretty sure was there before diagnosis bc I check down there regularly and have since I was a teenager, this is going to be a long post as I said I’m spiraling and need to get this off my chest.
Starting off, my issues started 4 months ago. I out of the blue got irritated (no itching just irritation especially urethral). When I went to the doctor I had yeast (confirmed and also wiped off completely) in the folds. I used a antifungal/steroid cream for 2 weeks and felt great until a week into using this cream I developed a sore area on my vulva that I feel when I pee and have a bm. Nothing visible there except redness. Sex is fine doesn’t make anything worse (knock on wood).
Next, after a 2 appointments with a gyno I decided to go straight to a vulvar specialist who was amazing and very kind. She told me I would be okay, gave me estrogen cream and clob ointment, explained everything to me. She told me we could fix the fusion if not with creams then surgery. Which I felt pretty good and was like okay I mean not what I wanted to hear but I’m not dying so that’s great.
I felt good until I started looking on Reddit now I’m spiraling. There are so many people saying different things on here and it’s scaring the heck out of me. I’ve read that some people are saying scarring, fusion, progression is inevitable with this, also read fusion is often not reversible which none of this is what I was told. I’m just getting pulled in different directions here and it is terrifying me. I’m only 23 years old and scared to deal with this. I’m in a long term relationship. I don’t understand, when this came on I was happy, not stressed, nothing. I don’t have any other health conditions. Only medication I’ve taken ever is birth control not for any reason other than not getting pregnant. Now I’m panicking and bawling my eyes out. I just know what to think.