u/Inevitable_Rock_2344

I had my first round of IVIG on Tuesday. I didn't have any side effects. As a matter fact, I felt great afterwards. Then the second infusion was completed 2 hours earlier than my first infusion. I didn't think anything of it..Later that night I experienced the most painful headache in my entire life. My husband had to rush me to the hospital. They gave me some concoction to ease the headache. I took the pre meds before both infusions. Please give me any advice to help. My rheumatologist did update my orders for a slower rate.

Is anyone located in the Metro Atlanta area? 💙

I would love to start an in person support group for those living with myositis or any autoimmune disease

If you're interested, please send me a DM. I'd love to see how many locals are out there and potentially organize our first meetup! 🙂

Is anyone located in the Metro Atlanta area? 💙

I would love to start an in person support group for those living with myositis.

If you're interested, please send me a DM. I'd love to see how many local myositis warriors are out there and potentially organize our first meetup! 🙂