u/Informal_Being_6879

Anyone have experience with huge tumour?

My mother (62) has only had an ultrasound so far, no other imaging. Urologist said she wouldn’t bother doing Cystoscopy due to current partial blockage of kidneys, instead scheduling TURBT (tomorrow).

She said it’s 9cm which is freaking me out. Has anyone had a tumour that large here?

The last week all I have been doing is endless research but can’t find a lot on anyone having a personal experience of such a large mass. I don’t know if it just means 9cm length and possibly smaller width or circumstance or whatever.

I’m just thinking with that size there’s no hope for good news. The urologist is hopeful and says she believes with bladder removal it will be curative but how can she state that with only having seen one ultrasound?

Sorry for the messy post, just endless worry.

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u/Informal_Being_6879 — 1 day ago

Some advice please

I’m new to this but my mom (62) had uti symptoms a few months ago which showed active E. coli infection. Antibiotics didn’t clear it so she had an ultrasound. It showed a substantial mass (9cm). We finally saw urologist today who said she’s fairly certain it’s muscle invasive.

We were meant to do a flexible Cystoscopy today but upon review of my mom’s notes the doc said she wants her straight in for a TURBT, and basically said bladder removal will most likely be the go to.

My mom isn’t great at relaying info and I’ve only been present for today’s consult. I’m a little shell shocked as I was naively under the impression that they couldn’t tell much from ultrasound. So to go from that to the info today was a lot.

Can anyone give me advice moving forward? I didn’t even think they could definitively say whether it was muscle invasive from one ultrasound. What questions should I be asking? And what to expect from the TURBT/biopsy? This all sounds dumb im just struggling to even know what to expect diagnosis wise and what stages or level of muscle invasiveness means what.

All the urologist said was we need to act fast but she believes with bladder removal it will be curative.

My nana (mother’s mom) died of bladder cancer 3 years ago and it was very fast. I just want to be a bit more informed this time.

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u/Informal_Being_6879 — 4 days ago