r/BladderCancer

Hey all,

I(32m) got my 1st TURBT today. It was to resect a 1.8 cm bladder tumor. I have a follow up appointment on Thursday. Unfortunately, I had to go home with a catheter, but hey, it could be worse. Having a catheter and walking around isn’t dead, so that’s pretty rad. I can’t EVER forget that 😊

I was wondering, did you guys have the feeling like you needed to pee chronically? It feels like I always need to pee, it’s pretty odd honestly. It’s my least favorite feeling in the world, so I’m just gonna take it as an opportunity to practice presence and mindfulness…or, I’ll go insane, let’s roll the dice and find out what life brings 🤪

To any and all going through the same thing, we’ve got this more than you know. All of you are living inspirations, never let this disease convince you otherwise. If you needed a reminder of that today, here it is💪

Fuck cancer.

P.S. This Reddit got me through today, and I can’t thank all of you enough

I’m new here today, but I have been fighting bladder cancer since 2015! My last TURBT WAS the 29th of this month, I’ve had multiple chemo treatments all different types of chemo. And yesterday when I talked to my doctor he told me that nothing has worked and I would have to have my bladder taken out! So I just wanted to know how many men in here have no bladder or a new bladder ( that they can make a new bladder with your intestines!

Hi everyone,
This is all new to me and I wasn't sure which way to turn. My Dad turned 80 in May and the following month was diagnosed with stage 3 MIBC. In August it was upgraded to stage 4 with mets to the stomach and lung.
He's started chemo/immuno therapy this month and reacted badly. He's currently in hospital with diarrhoea and we're waiting on a CT as there may be a blockage.
He's debating giving up and I just wanted to know if anyone had any experience in a similar situation. I'm not naive enough to think everything is going to work out but I want to know what we're in for and if pursuing treatment will give him any quality of life.
Do the side effects from chemo let up or is this what we're in for for the next (possibly) 1-2 years?

My original post is from 3 months ago and isn't as readily visible as it once was, so I thought I'd create a new post every few months so people know this Word doc is available to them.

It contains general info on what to expect related cystoscopies ("cystos"), TURBTs (the procedure to remove tumors), BCG treatment (a common immunotherapy to treat BC), Gem/Doce (chemo drugs to treat BC), a small section about muscle invasive BC, along with resources for new BC patients, the latest BC treatments, common acronyms and some terminology. I also included my timeline at the top of the doc. You can download it here:

https://www.reddit.com/r/BladderCancer/comments/1uyk6ye/a_guide_for_newly_diagnosed_bladder_cancer/