u/Dicklickshitballs

Question for those who ended up with cystectomy

I hope I don’t offend anyone or scare anyone but wanted to ask if you started off with invasive or at least stage 1 and how quickly it happened. While I know everyone is different and there are no guarantees, I only ask because I started off multi focal ta high grade a hair over a year ago. Had one recurrence of 2 small low grade tumors. 2 clean scopes and cytology in row. So no recurrence of high for a year. Just wondering if this bodes well for the future or if anyone was on same path as me and suddenly after a year or two it suddenly went bad.

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u/Dicklickshitballs — 6 days ago

Around year ago original dx multi focal high grade tumors. Started gem/doce. 6 week induction. My first scope scheduled after that was a little further out than I was comfortable with so I requested a scope at around 3 month mark and it was clear however 42 days I had the other scope that had been scheduled and I had a recurrence. 2 small tumors but this time low grade ( thank goodness). However last scope was Feb 2 and it was clear! So now my next on is on Monday and I’m scared. All the odds I’ve read say I’m more likely than not to be recurrence free but the experience of having clear scope then a recurrence has me worried it’ll happen again though I guess recurrence after induction is fairly common and now I should be more protected because of the monthly maintenance treatments. Wish me luck!

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u/Dicklickshitballs — 23 days ago