Kicked out of hospice for taking parkinsons meds
My parent was sent to Hospice a week ago after choosing not to continue treatment for brain cancer. They were not taking any meds in hospital. After about a week in hospice they decided to start taking their parkinsons meds so they could eat a little. The hospice said they no longer qualify because they're taking meds and eating and sent them home.
They are bedridden and unable to care for themselves. Since stopping the brain cancer meds they are also increasingly confused and combative. the care aide only cooks and cleans and is there to call 911 in an emergency, and doesn't do any nursing, and is about 6 times the $$ compared to what their social security is and that is only for a partial day.
Everyone needs to work, no one can afford to take off time from work. We tried contacting medicare and a social worker, and the hospice. No one seems to be any help. Not sure what the next step is but they're going to end up being alone for hours a day and I'm afraid of what can happen. Their social security is above the medicaid limit. Their only income is SS. Any suggestions on how to navigate the system quickly? She has a house, but we would have to get a conservatorship and figure out how to pay for assisted living while we were trying to sell it. They are no longer of sound mind to sign off on a conservatorship. And no one has the $$ for a lawyer to help. We're stuck in that place between too poor to afford anything and not poor enough for the government to help.