u/Intelligent-Bid6562

Recently diagnosed with CLE and SLE. Rough summer! I’m on week 3 of HCQ at 400 and tapering down prednisone right now. I’m at 20 for another 5 days. My question I am hoping someone can help with is my skin! Omg my hands are just awful. So so so inflamed—cuticles on fire. I can’t touch anything. Debilitating. So sensitive. I’ve been working with my dermatologist and have clobetosol and tracoliumus—feels like neither help. Anything else????? Swollen k fingers/knuckles as well.

Hi all. Just venting. Been the worst summer of my life. Got diagnosed with CLE and SLE and started HCQ about 3 weeks ago. Been on pred since early July and tapering down now. Currently on 20 for another ten days. Every freaking day I’m waking up with new crap—-today—-swollen knuckles. Some weird painful thing happening on my lip. My skin on my hands is awful, sooooo sensitive. Can’t use them without gloves and my arms are so weak and warm when I wake up. I’m so over this. I am 41 with two elementary aged kids. I miss my body. Waiting for hcq to work is really hard and this morning I just can’t stop crying. Just pain and annoyance. Trying to pack and clean and I can’t. Anyways…..thanks for listening. I’ve read so much in this group and it’s very helpful. I didn’t even know what lupus was till this summer.

Hi all. Just venting. Been the worst summer of my life. Got diagnosed with CLE and SLE and started HCQ about 3 weeks ago. Been on pred since early July and tapering down now. Currently on 20 for another ten days. Every freaking day I’m waking up with new crap—-today—-swollen knuckles. My skin on my hands is awful, sooooo sensitive. Can’t use them without gloves and my arms are so weak and warm when I wake up. I’m so over this. I am 41 with two elementary aged kids. I miss my body. Waiting for hcq to work is really hard and this morning I just can’t stop crying. Just pain and annoyance. Trying to pack and clean and I can’t. Anyways…..thanks for listening. I’ve read so much in this group and it’s very helpful. I didn’t even know what lupus was till this summer.

Hi all. Just venting. Been the worst summer of my life. Got diagnosed with CLE and SLE and started HCQ about 3 weeks ago. Been on pred since early July and tapering down now. Currently on 20 for another ten days. Every freaking day I’m waking up with new crap—-today—-swollen knuckles. My skin on my hands is awful, sooooo sensitive. Can’t use them without gloves and my arms are so weak and warm when I wake up. I’m so over this. I am 41 with two elementary aged kids. I miss my body. Waiting for hcq to work is really hard and this morning I just can’t stop crying. Just pain and annoyance. Trying to pack and clean and I can’t. Anyways…..thanks for listening. I’ve read so much in this group and it’s very helpful. I didn’t even know what lupus was till this summer.