u/IntroductionOdd411

▲ 3 r/MCAS+1 crossposts

What is your experience if any with Micronized PEA Palmitoylethanolamide?

I had been taking this at 600 mg per day for about five months.
I read several articles about it being good for histamine, intolerance, and MCAS.
At first, it was pretty good. It felt like it was helping me in many ways with sleep and joint pain and nerve pain and intolerance to the sun and I was doing pretty good but after about five months, it started making me lethargic and fatigued and I had nonstop headache, and loss of equilibrium where I felt like I was going to fall, and it also seemed to start causing insomnia and constipation, and memory problems.
It stopped helping my joint pain also so I decided to get off of it cold turkey. I’ve been off of it about three weeks now and for those three weeks, I have had a shit storm of problems with my health it’s almost like a withdrawal from a powerful drug. My back is inflamed. My body is on fire. I can’t be in the sun for 10 minutes without days of flu like symptoms afterward. I was better off before I started it. I wish I’d never started taking it. I’m hoping this will pass and my body is just going through something and I can go back to how I was before, but I’m starting to feel kind of scared. Has anyone had any experience with taking this for a extended amount of time and then trying to get off of it I’d love to hear about this!

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u/IntroductionOdd411 — 7 days ago