NAION- anyone?
I will try to not make this too long, but could use some help. About a month ago I suddenly lost complete vision in my left eye. I spent 10 days in the hospital and have been to all the doctors I saw while in the hospital. It was a split decision on if I had NAION or GCA (Giant Cell). Well, now my right eye is doing the same thing. I have a really good doctor. He did testing etc., and we still can’t rule out either disease but he is leaning towards NAION. Back on steroids daily. My real question, has anyone else had this happen to them in both eyes and so quickly AND, what should I be doing to prepare for going blind in both eyes if it happens, which I am headed that way. I’ve been trying to find anyone to help me and all I get is sort of lip service or that they only service kids. I am an adult. Should I be trying to get a cane, and if so where and who trains you to use one? I’ve read to learn to use your phone with different settings, but I don’t even know what settings I’m looking for to improve my phone. I just feel like I need to hurry up and do something so when and if I do lose both eyes I’m not just so off guard and lost. I live in Austin and we have a school for the blind here but they only help children. I called the Lighthouse (I believe that’s right) and they didn’t have anything to say either. Is it supposed to be this difficult to find help? I’m starting to get really frustrated and I feel like I am running out of time. Please write nice comments and helpful information and thanks for listening. 🙏