r/monocular

Very straightforward, I just want people's opinions as the eye Dr's I've seen have not figured it out.

I was born with no sight in my right eye due to no optic nerve developing (the original diagnosis, which recently I've been told there's some, but not enough for me to see). When I was 11, I went from seeing nothing in that eye to just black, which everyone told me was what I was supposed to 'see' when I was blind. This later progressed to me seeing white spots and then being able to make out colours. I was taken to an optician at the time who said I was faking it for attention 😒.

I'm now able to see shapes and make out objects clearly enough to know what they are, but I am still considered legally blind in that eye. I've seen two eye drs (I can't spell the actual word), and the first was too confused, so referred me for a second opinion. The second one told me I'm visually hallucinating, which I tried to argue, was asked if I focus on it, does it become clearer, which yes, it does, and apparently, that was confirmation.

I've never heard of anything like this happening and can't find anything online, so I was wondering what people think. I'm not looking for a diagnosis, just a theory or explanation of why this happened.

Thank you.

I literally have to carry around castor oil or coconut oil and put it on my eye every half hour- hour its its windy or hot, otherwise my eye goes completely dry, eyelids stuck dry. But i dont like doing that in public, and I ended up with an oily under eye so it ruins makeup.

I never had it this bad when I was a kid/teen or young adult. Im now 33 and its driving me nuts. I have always felt it more in the evenings/night, so thats somewhat normal, but still pretty annoying. If i was to go out somewhere it ruins my night as im constantly uncomfortable unless take my eye out and wear a patch. But ideally if I was to go on a date or something id like to not need to. Does anyone else suffer the same way? Have you come up with some kind of a solution?

hello, I've had monocular vision my entire life and my vision is probably not likely to get worse anytime soon (my whole field of vision is purely my left eye, and my left eye can see perfectly fine maybe a little near-sighted, I do take eyedrops to lower the pressure in my left eye tho).

I personally don't consider myself to be a disabled person, but I didn't know if it was worth ticking the disability box anyway since employers might consider me to be a disabled person? I know that it has a higher chance of guaranteeing an interview, but I don't know if it also has a higher chance of them discriminating against me due to it (to be fair, my eye does visually look different regardless - they're different sizes and different colours).

does anyone UK-based (or in countries with similar systems) here tick/not tick the disability box? I would love to hear opinions of people in similar situations.

How long till I stop feeling alone and sos different from everyone ? Or will it be like this forever ?

I’ve only started recently doing my makeup but because I can’t see out of my left eye it means that doing eyeshadow on my right eyelid is impossible, I try to memorise the motions I make and repeat them on the other side and open and close my eyes enough to make sure it looks accurate enough to pass as semi similar. I thought I was doing a good job until I got insulted by a colleague at a work night out for it. I’ve been nervous to try eyeshadow again but since I’m pretty into the gothic/ grunge style it’s kinda a staple!! Is there anything you guys use to make it easier?? Like a stamp or something or do you ask someone for help or will I just learn how to make them match 100% over time and I’m suffering with just being a beginner haha. Any tips at all are appreciated :)

Sorry if this is not allowed, I’m not sure if this technically counts as monocular but I figured if anyone would have the answer it would be people here. My mom recently had retinal detachment surgery and was told that she can’t expose it to outside water (she can shower+bath but no lakes or pools) for a month to prevent infection. However she has a seasonal campsite on a pond that she would be devastated to not be able to go in. She is currently looking at goggles, but I fear that would be too bulky for her to wear all day. Her appearance is also very important for her business so I fear she would get crazy tan lines on her face from continuous goggle wearing. So I’m trying to find an eyepatch she could wear that would keep water out of her eye.

She is familiar with wearing eye patches from past issues with her eye, and she says she doesn’t trust adhesive patches bc the ones she tried in the past left large gaps around the seal. If anyone has any suggestions or recommendations for patches or tricks that do not have this problem I would greatly appreciate it.

TLDR: looking for eyepatch suggestions to keep water out of contact with eye and has a secure seal

I didn't have my eyes checked until I was 5 years old, and it was only because my school took pictures. For years now, I have been wearing quite the crazy glasses prescription: +5.25 in my left eye, also lazy, and -1.75 in my right eye. The left eye also causes double vision and I had an extremely strong prism in my lenses, and I still had double vision even with my glasses.

I had my annual eye exam Thursday, where my doctor decided to try something and tried all kinds of lenses in my left eye. Nothing would make it see clear, everything is a blur in that eye. She is now trying me on a balanced -1.75 prescription with no prism, since there's no point in putting all that power in an eye that's not working anyway. Kinda nervous to try it, but again, whats the use if my eye isn't using the prescription anyway.

Thinking back, I realized I've been this way for years, no doctor just decided to look deeper into it like that. I've always noticed I manly see from my right side. I can block my left eye with my hand and see no difference except some peripheral vision.

I just wanted to rant a minute. Even though this has probably going on all my life, just finally realizing my eye wasn't working the entire time like I thought is bumming me out.

How do you live with the grief, depression and fear of the future?

How do you deal with losing something so precious?

I am recently monocular from uveitis and secondary complications such as glaucoma and closed angles.

It happened ten months ago.

It just slowly got cloudier and cloudier to the point I couldn't see anything aside from ambient light.

I never felt pain so I just assumed my eye had gotten infected and tried to tough it out.

First I had severe inflammation that caused large amounts of vitritis that cause all kinds of complications.

Spent all the way until June of this year managing the pressure and inflammation the best I could going to many doctors.

Doctors were to scared to operate.

I had high pressures, my pupil got stuck to my lens and scarred over.

This whole time I just thought my LP only vision was being caused by the thick scarring or a cataract that every doctor said was dense in their own way.

Had an operation a week ago and the pupil is opened now, pressure is down but my vision is still the same dark grey smoke.

Maybe there is still a cataract left but I'm not quite sure it can explain this extremely poor vision.

Going for a follow up as they still can't take pictures of the back of my eye.

I guess I'm just waiting on a diagnosis.

Having said that.

I'm very depressed.

It's been a long ten months of taking medications and looking for someone to finally get rid of all the scarring.

I was hoping to see some kind of improvement but I obviously did not.

So my question is.

How do you cope?

I'm extremely depressed, living in this constant loop of regret and anger.

I didn't have an accident or survive some kind of violence therefore I should be greatful.

I simply tried to tough it out and watched it get to this point and then I went to a doctor.

Can't change the past.

Anything helps.

I miss it all.

I never had much anyway and going blind or anything like that I always thought would be the worst sense to lose.

It happened to me and I still can't believe it.

I'm sure many of you have had years to get over it or learn how to live etc.

But this road I'm looking at looks like one of pain and I'm not so sure I want to go down it.

Very random, and possibly the wrong subreddit for this question, but I figured it was worth a shot!

I’m monocular (blind in one eye) and wear a scleral shell, and my style leans alternative/experimental/coquette/whatever I feel like that day. As much as I like my shell, I would love to explore cool, fashionable and unique eyepatches!

Does anyone know of local stores (costume, vintage, etc.) that might have a cool selection of eyepatches or eye accessories (even cool eyeglasses or sunglasses!) that I can check out?

Hi, new here. Seeking potential thoughts or advice on my situation.
\*I understand that I need professional help and I have already taken all the steps. I just need some additional perspectives.

I am female (32) and a short of my medical history is that I am medically complex. I have dysautonomia and all the fun that comes with that (tachycardia, hypertension, hypoglycemia turned diabetes, hyperhidrosis, PCOS/PMOS), and I’m autistic+adhd.

I had a hip surgery (labrum tear and hip impingement repair) early June and have been recovering from it. So far it’s going well. The issue started with me having odd side effects. I lost sense of taste and my near sight and auto focus for a while and it was coming back in slowly. Apparently it’s not an unheard side effect of anesthesia. I talked to my surgeon and went to see an ophthalmologist. My vision is fine for the most part and coming back almost fully. The issue then was that they noticed I have swollen eye nerves. This took me by surprise. I booked 2 MRI’s and made an appt to see a neuro ophthalmologist.
Now here is where I am feeling stuck and not knowing how to proceed. I don’t have headaches when I was asked or any of the other things I was asked, but then I have noticed some things I hadn’t paid attention to.
\-I do have occasional feeling of pressure, like when you take off on an airplane, it’s on my forehead and top of the head, but not quite a headache.
\-One that is much more noticeable, specially because it has gotten much worse, is that every time I get up from any position, sitting, laying or moving too quickly, it’s like I get this wave of dizziness and my vision fades in and back and like my brain fogs up. It lasts a few seconds, but it’s gotten much worse. It’s odd because sometimes I get up and I am fine and there’s a delay of a few seconds and then it hits me. I usually pause and hold on to something and then continue on my way. I didn’t think to mention to the ophthalmologist because I thought it was happening because I’ve had to spend so much time laying down for my hip surgery recovery, but it’s actually gotten worse and sometimes it happens even when I’m not getting up or shifting positions and I’m just mid walking or doing an activity.
\-This one is embarrassing but it’s now so bad that I can’t ignore it. But incontinence. I always wore panty liners because I like to protect my underwear. I have always had occasional overall dampness on my underwear and liners etc because I have hyperhidrosis and can’t control sweating. It’s better now it’s medicated. But lately I thought it was just my period, (on an unrelated note I’ve been bleeding excessively on a new birth control and I have no idea what to do about it, atm it’s 5-6 tbsp a day, i use a cup so I can tell. But I’ve also been bleeding non stop for the last 3 weeks while my body normalizes) but I was bleeding so heavily I switched to my cup, but that’s when I noticed that I’ve had my back up pads soaked through to my underwear and shorts every day multiple times a day the last 2-3 days. I have literally bought adult diaper underwear because I don’t know what else to do.
\-This one could be random but at this point I’m trying to not rule out anything, but just today I’ve had insane tremors. I’ve struggled with fine motor mildly since I was put on pregablin for a back injury. But today it was out of control. It felt like I imagine I would if I were to ever double dose on my adhd meds and drink a double Vietnamese coffee all at once while having a low (diabetic).
\-I wouldn’t even have thought to mention, but the last couple months my sense of smell may have gotten more sensitive. It’s very specific to anything breaded that is either fried or put in the oven or air fryer. I have to open all windows and fan the house if my husband or roommate cook something like that because it makes me so nauseous I want to throw up and feel sick.
\-overall I don’t know about this one, because it could also be due to recovery, but I’ve been feeling so tired and low energy/stamina. I can barely get anything done. I’m active doing a sitting activity for an hour and then I just have to lay down because I’m so physically and mentally exhausted. I thought it would get better as I recover but I just get mentally so tired.

After all that, if you’re still here. I am just wondering how urgent my situation is. My neuro ophthalmologist appt isn’t for another month and I don’t know if I should go to hospital etc because of my symptoms suddenly escalating. The bladder control stopping just really feels like it pushed me through my mental threshold of ability to not freak out. I don’t want to be on diapers for the next month to my appt. My MRI was last Thursday and they never uploaded it to mychart. It’s made me paranoid because it usually just takes them a day or two to do that. Is what I am going through normal or is it a situation where going to the hospital would be merited? And would they even be able to help me if I were to go? Are any of my symptoms indicative of anything specific? I feel like it’s hard to say because I don’t have the obvious symptoms. I’m just really trying not to spiral. But any advice? Reassurances? Anecdotes?

There's a good chance I'm going to lose one of my eyes. how long until you could drive? I'm the only one in my family able to drive (they have their own reasons) so everyone relies on me.

And I'm not sure how to handle it?

I have unilateral micropthalmia and have lived all my life (27 y/o) without a prosthetic because none of my optometrists seemed to push it, even as an adult. I do wonder if its bc if the lack of ocularists in our state. Anyway, now I'm kind of wondering if I should get one. My affected eye grew to be a little smaller than the other. I googled and it seems like insurance would cover it but I feel like I'll get denied because I'm too old now & my eye has kinda settled in. Should I try asking my optometrist about it?

Hi guys. I had ocular melanoma and about a year ago I had brachytherapy done on my eye. In my left eye I pretty much have no peripheral vision, flashers, and lots of floaters. It’s always painful. It feels like my eye is too big for my socket and is squeezing out or like someone is scooping it out with a spoon. I’ve gone to the doctor and everything looks normal. The cancers dead and there’s nothing wrong that they think is causing this. They’re telling me it’s effects of the radiation and there’s nothing they can really do to fix it. I did wear an eye patch to help make my vision clear because when both eyes are open they work together and so there’s floaters everywhere and my eyes are constantly trying to focus which then causes headaches. I stopped wearing the eye patch because it was so annoying to always have something on my face. I tried the adhesive ones too. Now I’m thinking about getting my eye removed. Is that a dumb idea? I just feel like it would help. But I also am only 18 and don’t want to regret it later. Has anyone gone through a similar experience or just have had their eye removed? I would love any advice

So I got a peg implant when I was little 18 and didn’t research properly at the time. At the time my peg was needed because my prosthesis then wouldn’t move at all. But now that I am older I am soooo scared that an infection is inevitable. What should I do :( is it true that eventually we all get infected? What happens if an infection happens

Hi everyone,

I had major trauma in my left eye 6months back at age of 26 .Now that this has sunk and looks terrible,Doctor has suggested enucleation and prosthetic eye . They say current eye is not stable for prosthetic shell as of now.. Should I wait for this to stabilize and go for prosthetic shell over this eye or get this eye enucleated and use prosthetic eye?

What are side effects of enucleation?Will I regret doing that?

Im pretty comfortable driving in my own country but im going on holiday this summer and would like to rent a car. They drive on the other side and this worries me! Has anyone tried it ? And how is it ?