I'm curious to all the medication you have tried for treat this evil crap and if it help or made it worse!
This shit is like the most invincible brain disorder ever it's like immune to everything imaginable
Does anyone else get symptoms that flare up for a while, disappear for ages, and then come back? It's really strange.
I sometimes get trailing in my lower peripheral vision. For example, if I'm holding my game controller and the LED light is on, when I look away it can leave a trail. then it goes way for months only to return for a while
Occasionally I notice flickering in my vision, but then that symptom can disappear for months. Sometimes I get floaters that become noticeable for a while and then seem to fade away again.
I'll also get ringing in my ears for a few days, and then it goes away for long periods. My positive afterimages sometimes become very faint and weak for a while, then later become stronger again.
Another strange thing is that I'll become aware of the tip of my nose, usually only on the right side, for a few days, and then that symtom disappears for months.
About once every six months, I experience a zigzag, rainbow-like migraine aura that lasts around 10 minutes and then goes away, for 6 months then happen again.
Does anyone else experience symptoms that come and go like this? It almost feels like my brain is trying to fix itself, but can't quite get there completely.
I've had this crap 6 years now! been non-progressive in fact as I said my symptoms seem to have regressed a bit which is good however anyways else get this issues where certain symptoms pop up then piss off!
I am just wondering what it did for your symptoms , clear them up for how long how much did you take and no, I'm not going to touch the crap myself just wondering, what did it do for static and after images
Last night was the first time in about 5 months that I didn’t sleep at all. I’m absolutely shattered today. Even 3–4 hours would have been better than zero.
I probably should have taken the zopiclone last night I don't like to take it after I've been laying there for ages otherwise i feel just as shit anyways, but I try to limit it to only twice a week no more. It’s strange though I previously did a 10-day stretch on it, and when I stopped, I slept fine the next night like a baby. Normally I only use it on weekends, and I was on night 5 without it this time, trying to push through without it.
Guess that’s not happening now.
What’s odd is that last time I came off it 5 nights ago I still slept fine, but last night was completely wrecked, and the night before I only got about 4 hours. I honestly don’t know how I’m even functioning right now. normally rebound happen the nights you stop I guess its just a flare up!
I’d forgotten what it feels like to be awake over 24 hours straight it’s awful.
6 years I have had visual snow syndrome for 6 years , its been relatively stable over that time, some symptoms even improved over time however still a dog shit disorder want it gone. not one symptoms all of it!. Wish this thing was never a thing wish VSS did not exist!