r/visualsnow

Like totally done with this subreddit. From the guy who cant stop seeing his nose to the one whos afraid of totally normal visual phenomena, to the one asking about his amsler test. I ve been hurting myself for a Whole year with this visual snow fucking bullshit, comparing symptoms and what not, this sub literally gave me palinopsia, once i read about it, i saw It, fuck that. Yeah i got symptoms, yeah i see the static,it hasnt bothered me for half my life untl panic kicked in,.and it did, shit got worse, is an attention/awareness problem. this shit has dictated my life in the past year but that was fear and im rejecting it. Im done. This post is not for you, its for me

Ill try to live my Life freely and might God help me. And i wish the best health, luck and love to anyone reading. I just Need to save myself from this self damaging spiral. Love goodbye

It's kinda embarrassing.

I have visual snow and tinnitus from a young age. Lately my tinnitus got worse

And for the past few days I'm noticing my nose all the time in my field of vision

Its like there's always this 'after-image' of it

Does anyone experienced this? Does it get better?

Ty

Hi everyone,
I’m 18 years old and from the Czech Republic.
I haven’t been officially diagnosed with Visual Snow Syndrome yet, but after learning about it recently, I’m almost certain this is what I’ve had my entire life.
I first noticed something was wrong when I was around 10 years old. I realized I wasn’t seeing the world the same way as everyone else. I told my mom, and we went to an eye doctor. After the examination, I was told that my eyes were perfectly healthy and that I was probably imagining it.
A few years later I saw another ophthalmologist. The only thing they found was slightly elevated eye pressure, but once again I was told that everything else was normal.
Since I was about 12, I’ve spent countless hours searching the internet, trying to find someone who sees what I see. I only found information about floaters, but that wasn’t even close.
What I see is **constant visual static 24/7**. It has never disappeared.
The worst part is at night. The static becomes so intense that I struggle to see in the dark. I often have to use my phone flashlight just to walk outside because I can barely see anything. It honestly feels like I’m almost blind in low-light conditions.
For years I just accepted it because I thought there was nothing I could do.
Then, when I was around 16, I started developing severe headaches, pain around my eyes, eyebrows and forehead, and migraines. Over the last two years they’ve become progressively worse.
So far I’ve had:
a normal brain MRI,
multiple neurologists,
several eye examinations,
triptans and different migraine medications,
but nothing has really helped.
Only recently I discovered Visual Snow Syndrome, and when I saw simulations of it for the first time, I almost cried because it was **exactly** what I’ve been seeing my whole life.
Now I’m wondering if my migraines could be related to VSS. I’ve read that migraines are common in people with Visual Snow Syndrome.
The hardest part is that almost nobody in my country knows about this condition. I don’t know which doctor to see anymore.
So I wanted to ask:
Does anyone here have both **Visual Snow Syndrome and chronic migraines**?
Has anything actually helped you? (Lamotrigine, Topamax, FL-41 glasses, or anything else?)
Does anyone know a doctor or clinic in Europe that specializes in VSS?
Has anyone here participated in research or a clinical trial?
I’m honestly feeling really lost. I’m only 18, and these constant migraines are taking away so much of my life.

This is my first summer with visual snow never had it before shit depressing can’t even watch fireworks or go out with my friends anymore shits bullshit asf can there plz be a cure I want hd again im sure we all want hd again

So I've recently been thinking about using low dose atropine for treating my eye floaters and I'm just curious if it will have any effect on my visual snow (my visual snow is quite mild).
Is there anyone else that's using atropine with visual snow? I want to know your experience with them and if it makes the symptoms worse.

Hi member of this brave community. I have, for soon 2 years, have developed the symptom of VSS i do not have a official diagnostic yet but at this point im convinced i have it since the description people give is exactly my situation. So the reason of my post is because the symptoms started appearing for me after a evenement who traumatized me. I won't go into detail but i can say i have witness the death of someone close. Since it happens the symptoms started slowly appearing till a point where they can't be ignored. I have seen ophthalmologist who told me that everything with my eyes is okay. I also been afflicted from chronical stress for at least 10 years and i have a cannabis addiction and i consume every day. As i understand these two points can be trigger for this affliction but it didn't appear since the event. Is it possible that my nervous system was on edge and the event was simply the last straw? And did some of you manage to control the symptoms with meditation and mindfulness? I hope one day being able to see the blue sky again and not be afraid of the hallucinations i see in the dark. Thanks for reading my post.

From the reading I’ve done, lacosamide seems to be the next closest thing to lamotrigine in mechanism of action (sodium channels), which I’ve been considering due to my Asian descent potentially making me at higher risk of SJS/DRESS. Has anyone tried Lacosamide and noticed an improvement or worsening of symptoms? Has it improved brain frog or derealization for anyone?

Also, I “got” visual snow around summer of 2022 shortly after I got the original COVID vaccine under Operation Warp Speed. I think I got Moderna but can’t remember for sure because I lost the vaccination card. I mildly regret taking the vaccine, but I obviously had some predisposition I didn’t know about and would’ve gotten VSS anyway if I got COVID, so I guess it doesn’t matter. If the vaccine was the cause, there must be some way to reset the immune response responsible for the VSS, but there doesn’t seem to be a way to do it in a clinical setting without a doctor calling you an idiot. Anyone have supplements they take for neuroinflammation?

I tried Valproate from 2022-2025 due to hallucinations and other weird brain zaps, and in hopes of helping with derealization, but stopped due to it causing chronic gastritis and duodenitis. Be careful with Valproate, it’s a really hard drug on your body.

Have anyone any experiences with the Two Path program? He claims to have an answer to cure chronic illnesses like Visual snow - but I assume in a way of reducing sympathetic nervous system and changing the obsessive compulsion aspect of the disease. I am really considering trying it out - but I costs a bit of money. That being said, if I could cure this sh*t, I would be willing to pay a lot of money lol.

https://preview.redd.it/7x7q7z3kq2bh1.png?width=2466&format=png&auto=webp&s=860497e029f309ae74bd4c62d9eb094ff426a29c

https://preview.redd.it/wgz2nxohq2bh1.png?width=2274&format=png&auto=webp&s=054059ee8f32e69f755f8e21ab5738674c29eab2

https://preview.redd.it/ntm26q9fq2bh1.png?width=2330&format=png&auto=webp&s=a681b3027e37d61eddf9a54b53c199033f8b29ee

I'm curious to all the medication you have tried for treat this evil crap and if it help or made it worse!

This shit is like the most invincible brain disorder ever it's like immune to everything imaginable

Am I the only one that has the perk that I see no difference in TV graphics? Like- YouTubers I watch will say stuff like “sorry for bad quality this time around, camera was bad.” Or something similar and I’m just here like “Really? Huh.”

It’s nice because I can have my stuff run really smooth on low quality because I don’t see a difference but also I won’t ever experience that feeling people get when they get all excited because a game has really high quality graphics or something. I dunno, it’s a small thing but as someone who games and enjoys movies it’s something I think about sometimes

Tbf the perk is great for someone with an Xbox One that is like over ten years old lol

I’ve had visual snow for 5 years so since I was 15. I was able to adjust to my symptoms after a few months and had lived a normal and happy life since then.

Fast forward to a month ago and I put on a new pair of glasses only for it to cause my vision to twitch and sway even with my eyes still, kind of like oscilepsia.

It’s been getting worse by the hour for the past 5 days and I don’t know what to do, I’m barely able to type this and I had to leave work early yesterday and I may have to quit my job.

I fear I’ll be permanently disabled if it keeps progressing and I don’t know what to do, I’m only 20 and my life is already over. I can’t drive, work, game, or watch movies. I’m basically stuck at home and I don’t know if I’ll ever live a normal life again.