r/visualsnow

He told me I can't get lamotrigine because of my heart, and topiramate has terrible side effects so he said this (atogepant). Is there any chance this helps me at all, if it's not migraine related heavily? Has anyone tried it? My biggest problems are visual fatigue and photophobia

My sister woke up just over five weeks ago with a constant spinning spiral/black dot in her vision, visible with her eyes open and closed. She has a history of migraine with aura, but this is very different from her usual short episodes. Her MRI, CT, EEG, blood tests and eye examinations have been normal. The exact diagnosis is still unclear, with persistent migraine aura and visual snow–related symptoms being discussed.

It’s been very distressing and has caused a lot of anxiety. She’s found a CBT therapist she really likes, but she’s torn about how to approach it.

Some advice encourages acknowledging the symptom and learning to respond to it without fear such as CBT Therapy. Other advice says to stop focusing on it and carry on with normal life. She worries that working on it in therapy could make her pay even more attention to it, but also doesn’t want to withdraw from life while trying to reduce stress and “regulate her nervous system.”

For anyone with similar symptoms, what helped you? Did CBT or mindfulness help, or did gradually getting back to everyday life help more? How did you balance the two? She also has medication phobia so isn’t willing to try meds.

Guys, I just want to ask: how many of you have forward head posture and horrible postures? In my opinion I don't know why but maybe the reason we have migraine and VSS is our posture and our nerves putting pressure on our nerves etc. You know what I mean? I looked it up: too many people have horrible posture and they also have migraine. What do you think about it?

Hello, if you think you might have illusorry palinopsia, here is a quick test for you:

1. Look at your hand with a relatively bright backround (Not low contrast)

2. Move your hand really quick from that one side to another.

3. You should see your hand stay behind for a tiny fraction of a second, almost not noticeable. If it lingers for longer than that one fraction of a second, you might have palinopsia.

This fraction of a second afterimage is caused by your brain's "refresh rate". With illusorry palinopsia, this refresh rate is slowed, which causes you to see it for longer. For me this confirmed that I dont have palinopsia, maybe it will help you too! 😁

Closed-loop neuromodulation: EEG/MEG or future higher-resolution sensors identify the abnormal activity pattern and stimulation is delivered only when needed.

Focused ultrasound neuromodulation (tFUS): potentially modulating deeper or very specific visual-network targets without surgery. This remains experimental for this purpose.

High-definition TMS/tDCS: increasingly individualized stimulation of visual cortex based on each person's functional connectivity.

Temporal-interference stimulation: an experimental approach aimed at noninvasively influencing deeper neural circuits.

Precision pharmacology: drugs designed to normalize particular excitatory/inhibitory mechanisms—such as glutamate, GABA, or specific ion channels—with fewer whole-brain effects.

Activity-guided treatment: advanced MEG/fMRI or future optical/electromagnetic imaging could potentially identify your particular phosphene network, allowing stimulation to be tailored to it.

Closed-loop implanted stimulation: farther out, very small cortical interfaces could detect pathological visual activity and suppress it electrically, somewhat analogous to responsive neurostimulation used for epilepsy.

This blue field entoptic phenomena thing is not only in blue but anywhere which is single colour or atleast bright places.For me it's like their are thousands of fluorescent dots moving fast across each other and sometimes without even much light one cell flows across my central vision.i assume it's a symptom cz I have little vss,eye floaters,pallinopsia.

But I really need a solution as I am 16.I need to study well and pursue a gud course .It's hard to ignore these.Atleast reply to this post and tell ur experiences,we vssers shud not get confined to our own places,where tinnitus guys wud regularly discuss Abt their problems and support each other.Atleast with tht this issue wud become noticeable.Its big 26 ' show some noise guys 👏