2 different types of brain cancer

Hey guys,
Today I had pathology results back for a tumour in my right frontal lobe. It came back as a grade 2 astrocytoma although one of the doctors thinks it’s a grade 3.
I do however have another tumour in the other side of my brain which my neuro surgeon is pretty confident is an oligodendroglioma. He said it’s very rare to see 2 different types of cancer in the same brain but I’m wondering how rare it actually is? Has anyone else been through this?

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u/Jimboonozza — 6 days ago
▲ 10 r/braintumor+1 crossposts

Dexamethasone vs my kitchen (and my sanity)

Hi all,
Im sorry for the rant and this may come off a bit tone death with everything going but this drug is killing me so I’m just going to state my extensive list of complaints to get it off my chest.
I had surgery 2 weeks ago yesterday and since then I’ve been on dex and it’s easily the worst part about the whole experience. People told me that I would feel tired and sleep so well after the surgery but I haven’t been able to sleep more than 5 hours a night and even when I do I wake up at least 3 times in a pool of sweat.
My face is bloated and oily and I’m getting acne everywhere but the absolute worst part of all of it is the hunger, I could eat a horse and still ask for seconds. I have no clue how much weight I’ve gained from all of this and it probably shouldn’t be my biggest concern with everything going on but if anyone has had the same problems could you please tell me how long it took for them to go away after tapering off the drug? I finish taking it completely tomorrow but I’m going to eat myself into financial ruin if this continues.
I suppose my main questions are:
When will I be able to sleep normally again?
Does the bloating stop quickly after tapering off?
Does the hunger stop soon or do I need to warn my local supermarket?

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u/Jimboonozza — 30 days ago

Can't sit exams, other options?

Hello all,

I am a year 13 student and I was meant to be sitting my A-Levels this year, but in January I had a seizure which started a long journey of medical related problems. I was diagnosed with epilepsy and originally my college was being very helpful. they gave me all the exam support they could provide but I ended up missing months of class because of having seizures and spending alot of time in hospital. I was planning on sitting my exams anyways and just trying my best but I got an MRI scan back and it turned out I had a cancerous tumor growing fairly quickly in my brain. My college were still wanting me to sit my exams at this point but I was told that id need to be in surgery right before my exams started. I mentioned this to them and they said that they could give me grades based off of my classwork but I couldn't get any official certificates from the exam boards. I kept pushing and they said they'll look into it for me which was good but since I've been in recovery from surgery I haven't heard anything from them. I tried to follow up on an email where they said about getting official grades but they are either busy or are ignoring me. its been a month now and I haven't really had time to dwell on the situation at all but its now hitting me that Im not going to have any grades if I don't sort this out.

the only other option I seem to have is to resit the entire year but after the year I've had so far I just wanted to move on with my life and get a job really. I don't plan on going to university so the grades themselves are not my top priority but id like to have the qualifications to be able to get a job.

Has anyone had any experience with similar situations or just getting grades at all due to not being able to sit the exams?

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u/Jimboonozza — 1 month ago

Post op!

I had my first (and hopefully only 🤞) brain surgery on Friday at 18 years old to remove a right frontal lobe glioma. I spoke with my surgeon before to decide whether the surgery should be awake or under ga, and we decided on ga. I’ll attach a photo of my pre op scans as the tumour was very close to a motor switch controlling my left arm and leg but I still have full mobility in both. My scans now are looking pretty clear, just a bit of residual tumour remaining. I’m on a lot of medication but the pain isn’t as bad as I thought it would have been. I wish I wasn’t so worried beforehand because after only 2 days in hospital I was discharged! Feeling quite proud of myself and looking forward to recovery 😁 Thank you to everyone in this sub for all your contributions as you help people like myself without even knowing it!

u/Jimboonozza — 1 month ago

Post surgery worries

Hi all, I was diagnosed with a glioma in my right frontal lobe in March. The doctors suspect that it is grade 2 and surgery was scheduled for the end of summer but I recently had an MRI and it’s been growing fast, meaning my surgery had to be brought forward to next Friday. Obviously this gives me a lot less time to mentally prepare myself.

In terms of the surgery itself I’m not too worried but the thought of going from my able-bodied, normal life to being in recovery and having to change my entire lifestyle in the space of 8 hours worries me.

I know many of you would have been through this and probably had the same worries as me. How has it panned out for you? Should I be as worried as I am and is there any advice that you could give me?

I really appreciate all of you who contribute here because it helps ease my nerves ☺️

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u/Jimboonozza — 2 months ago