More than one concurrent cancer?!
Hi all,
I'm a lymphoma survivor (currently in remission 🥳, though unfortunately long term this rare organ-transplant subtype is likely to recur due to ongoing immune suppression for my transplant).
Well, in February of this year, I went for my yearly gyno exam (I am 37, not on birth control as my husband had a vasectomy after 2 IVF rounds I did pre-chemo, we later had our miracle daughter 4 years ago via gestational surrogacy). I wasn't even planning to mention some ongoing bloating, but when pressed (I'm quite thin, so the abdominal bloating looked worse than it was) I mentioned a bit of constipation and maybe bloating....
Well, that led to the discovery of a complex cyst that they have been monitoring every 6 weeks. I had no interest in another surgery (I have had too many already for the transplant and cancer), and I was happy to watch and wait and the gyno never seemed too concerned.
That changed this last follow-up when it had grown (only a bit tbh, went from ~5 cm to around 7, so not as large as many apparently) but also growing pelvic free fluid (which had previously been called "physiologic".
They did an Ova1 test and ROMA.
My Ova 1 came back above 8, and my ROMA was worse (my CA 125 was apparently normal, only 24, but my HE4 was considered very elevated at 176. Not sure of the other values, haven't seen a report, just wrote down the values my doctor said when I got off the phone with him this evening.
On the bright side, apparently my CBC and normal labs like liver and kidney function look perfect (transplant doing it's job!).
However, I am now quite worried. The phone call from the Dr says I need to be seen rather urgently by an gyn onc and that he had already faxed records to the practice. I'm perplexed as up until this point I'd been told by him that all looked ok...
I am terrified of another surgery and being pressured into early medical menopause...and tbh cancer. I already get worried every scan for the lymphoma given I am told it will recur....
Please does anyone have similar experience? I'm not in huge amounts of pain and I'm wondering if a small cyst like this and lab results are hopefully being blown a bit out of proportion...