r/Ovariancancer

Hello,

I am in the early stages of a first recurrence after about 18 months NED. My CA 125 is creeping slowly up from <5.5 to 12.5 since June. A CT scan in June then July shows new stable carcinamatosis on the mesentery.

My surgeon called in inoperable. My oncologist is not ordering a PET or any different treatment.

I feel like the current treatment plan is to watch my cancer metastasize. They are taking my bloods monthly and only plan to scan every 3 months.

Surely more should be happening????

Brief history of my diagnosis and txt.

HGSOC Stage 3C. Braca1.

4 rounds Abraxane, Carboplatin.

complete hysterectomy, salpingoooverectomy, omentectomy.

4 more rounds chemo.

15 rounds Avastin alongside Lynparza

continuing with 500 my Lynparza

NED as of April 2025 until June 2026.

Hi guys .

My mom got diagnosed with 3c HGSOC , she's HRD negative , BRCA negative and TP3 Mutated around June 2024.

She went through a debunking surgery. And then went through 6 cycles of TP + Bev. And then she was on Bev maintainance for 15 cycles and was NED and all scans were fine.

Then this year in January her CA125 went to 100+ and we got her a PET scan which revealed free nodes in her peritoneum and hernia.

Then she was again put on chemo tabs which didn't work and she had a lot of fluid buildup

So we transferred her to Nab + Carb but then she got allergy from that and was put on GEM/BEV/CDDP but after three cycles of this her CA125 went up again and we saw enlargement of lymph nodes.

Now since her tumor is 75% for FA receptor her oncologist has adviced her elhare which is very expensive in india. And according to our doctor she has 6- 8 months.

I personally refuse to believe this because my mom has no symptoms now other than some mild pain abdomen.

For the time being doctor has put her on Lipodaxil. I don't know to take this all in. We had a lot of plans to go to Goa , to have fun. And I haven't had the heart to tell my dad about this number.

What do you guys think? Has there anyone in india that has gone through this and any advice will be fine? I can take a big loan but my brother is saying that it can be a problem for me in future to pay it off. I am torned how does one map their mother to money.

Thanks. Any advice would be great.

So I’ll try to keep it short, I originally went to the ER (told to go by OB) for a couple symptoms I was having for 2 weeks. They did an internal ultrasound and urine test. Came back I had a cyst on each ovary and that is what was probably causing my symptoms. 2 weeks later went to my OB to talk about them and do another ultrasound. She said one of them was “weird looking” it had blood flow. She consulted with other doctors and they agreed it was just a normal cyst and would eventually pop/go away. But they would keep an eye on it and do another scan in 6 months.
But then I decided to get sterilized so she decided during the surgery she’d just try to cut the cyst off.
So surgery came, the cyst hemorrhaged and they couldn’t stop it so had to remove my ovary too. Labs come back ovarian cancer. Doctor also checked for signs of endometriosis and didn’t see anything.
Doctor calls me apologizing saying she really thought it was just a cyst and I had to see a specialist now.
Seen the specialist who wanted me to get a full hysterectomy and take out the other ovary. Not even 2 months after the first surgery, I Had my second surgery for the hysterectomy and I had tons of lesions all over and they had to take my appendix out because of it. Turns out all the lesions were endometriosis.
So not only was the first doctor wrong about the cyst not being cancer, she also documented she didn’t see any lesions and or signs of endometriosis yet I had tons of it. And I feel like If the ER or OB would have just ran bloodwork they would have seen it was cancer on my Inhibition B levels and I would have avoided having 2 surgeries back to back.

Is this like a common occurrence when it comes to ovarian cancer diagnosis or should I file a complaint?

Hi guys,

Need motivation to get through this from tomm