2 years and 9 months later…I’m the opposite of who I was. I’m open to any suggestions.
At 46 I was VP level at work until I got rear ended while I was stopped at a red light (she was going 50 mph when she hit me). My car was crushed better her car and a truck in front of me. It’s been 2 1/2 years and now I can’t remember the procedure manual that I helped create even after I’ve been re-trained so many times that I can’t count. It takes me 80 hours to do the job that I used to do in 40 and I don’t do it any where near as well. I was misdiagnosed until a month ago with narcolepsy because I deal with insomnia and I could sleep 20 hours a day some days. Because the hospital and doctors told me that I was fine other than getting narcolepsy I didn’t file workers comp and now it’s too late. I’ve had to go on leave of absence twice and I’m so far in debt now from trying to get my brain back that I had to move from a $500,000 house into a travel trailer. I have time blindness, can’t remember anything that I just heard because I can’t comprehend it and I keep getting disciplined at work. I’ve tried sodium oxybates that left me drunk and I think fried my brain even worse. I use notebooks and I try my hardest but my brain just can’t keep up. I can’t lose my job because there’s no way I could learn a new one and I have to have insurance. The driver that hit me had State minimum insurance which barely covered the chiropractor and physical therapy for my back and neck which still kill me all day long. I have constant headaches where my head feels like my ears need to pop, when I read things it doesn’t translate like I’m reading a different language. What meds help you sleep and what helps you wake up? What meds help you get your brain going again? I use a cpap now and still have sleep studies showing that I get zero restorative sleep. I’m trying Aimovig for my head but it’s not working. I have constant body pain. I tried Wellbutrin and Duloxetine but that didn’t work out. Xywav, Xyrem and Lumryz left me feeling like I can’t remember the year of my life that I was taking them. I finally got in with a reputable neurologist and he diagnosed me with TBI but now it’s too late and I can’t do anything legally to have the money I need to get treatment and I have to work or I’ll lose my insurance but I’m literally a zombie at work that can’t remember how to do things that a new hire can do. I just want the pain to stop, my body to stop this hibernation mode where I’ve gained 50 pounds from switching to a much healthier lifestyle and I want my brain to get restorative sleep at night and function during the day. The dr scheduled me to try Botox next month. What has helped you get your life back because this is killing me. Thanks