u/KITKATKASP

Hello, I am 4 months postpartum and just diagnosed with Graves’ disease.. They said it started from the hormone drop that happens after Pregnancy. (I recently learned it does run in my bio family as well and on set is around 30) I have noticed a constant pressure with slight swelling and pain in my right eye since my hospital stay, (it also comes and goes in the left) and both the endocrinologist and ophthalmologist have told me that it’s not that bad and there’s nothing to really do for it.. they won’t even call it TED BUT I clearly have TED right? I’ve never had swelling or any issues with my eyes ever and as soon as I get Graves’ disease, this shows up.. I’m already on methimazole and some meds for my heart rate, but I want to know besides selenium, Is there anything for me to do? I am so terrified of my eyes changing and/bulging and both of them said that it’s not common but clearly my symptoms are headed that way. It’s already gotten so much worse in the last week..The Internet is terrifying.. and it sounds like even if I keep swelling down (which I don’t even know how to do at this point..), my eyes are going to bulge etc.

A little backstory, On my 31st birthday, which was May 15 I got a horrible migraine, it didn’t go away for two weeks and long story short after getting very weak and my heart rate being 150 when I stood up, I went to the hospital and had a five day stay where the hospital confirmed I now have Graves’ disease and most likely TED based on the symptoms.

so sorry for this long post I’m just scared and..no one seems to understand. Anyone that has dealt with this… My questions are:

Is there any way to try and keep my swelling down in my eyes?

Will my eyes bulge even if swelling is managed?

Now having two small children, this disease that makes me so weak..and now the perpetual fear (and pain) regarding my eyes…I don’t know how to calm down and of course, anxiety is a symptom..

Really any additional advice that you have is greatly appreciate…🥲

Hello, I am 4 months postpartum and just diagnosed with Graves’ disease.. They said it started from the hormone drop that happens after Pregnancy. (I recently learned it does run in my bio family as well and on set is around 30) I have noticed a constant pressure with slight swelling and pain in my right eye since my hospital stay, (it also comes and goes in the left) and both the endocrinologist and ophthalmologist have told me that it’s not that bad and there’s nothing to really do for it.. they won’t even call it TED BUT I clearly have TED right? I’ve never had swelling or any issues with my eyes ever and as soon as I get Graves’ disease, this shows up.. I’m already on methimazole and some meds for my heart rate, but I want to know besides selenium, Is there anything for me to do? I am so terrified of my eyes changing and/bulging and both of them said that it’s not common but clearly my symptoms are headed that way. It’s already gotten so much worse in the last week..The Internet is terrifying.. and it sounds like even if I keep swelling down (which I don’t even know how to do at this point..), my eyes are going to bulge etc.

A little backstory, On my 31st birthday, which was May 15 I got a horrible migraine, it didn’t go away for two weeks and long story short after getting very weak and my heart rate being 150 when I stood up, I went to the hospital and had a five day stay where the hospital confirmed I now have Graves’ disease and most likely TED based on the symptoms.

so sorry for this long post I’m just scared and..no one seems to understand. Anyone that has dealt with this… My questions are:

Is there any way to try and keep my swelling down in my eyes?

Will my eyes bulge even if swelling is managed?

Now having two small children, this disease that makes me so weak..and now the perpetual fear (and pain) regarding my eyes…I don’t know how to calm down and of course, anxiety is a symptom..

Really any additional advice that you have is greatly appreciate…🥲