r/gravesdisease

Hello- this is a question about remission.
54 yo female.
Dx with GD in 11/2020 -was on 5mg methamazole 2x per day to start off then decreasing to 5mg 3x per week in 2024. I was transferred to the NP at the office due to me being stable. I discussed at almost every visit my wish to completely go off of the meds and she kept saying next time…. Next time never happened. I feel the office is too overwhelmed with diabetes patients. I spoke to my primary care physician past two years and he finally said he would take over managing my medication. For two months I dropped down to 5 mg 2x a week. I re checked blood work and everything is still euthyroid. He told me to discontinue and repeat blood work in 1 month and 4 months.
Has any one quit cold like this and if so, has remission lasted? What should I look for etc? I do take propranolol occasionally for heart palpitations due to anxiety/menopause symptoms which were the same symptoms I had when I was dx with GD 6 yrs ago but now blood work is consistent with menopause.

Hello everyone! I (36 f) was diagnosed with Graves’ disease in May 2025. I started having symptoms of Graves in March 2025, which was a month after I had Covid for the first time. We found my tsh levels really low at my routine exam in April 2025 and I had more bloodwork following that finding which led to the diagnosis of Graves’ disease in May.

Anyways, I’ve been on methimazole since then and my levels have normalized within one year. My thyroid had even grown about 4-5 times according to my endo but has gone down.

My endo asked me if I still wanted to remove my thyroid as I was pretty set on having it removed but I changed my mind as everything normalized. I still get random high heart rates and get hot easily. I also get pain in my thighs and feel physically tired easily. I have a physically demanding job that I mostly enjoy, but my body has been feeling so tired as each month goes by. I’m not even sure if that tiredness is related to my graves or if it’s just my age. Lol.

I guess I’m just wondering if it’s worth removing my thyroid even though I’m mostly ok aside from being tired. I’ve been chronically tired since I hit puberty though, so idk if it’s worthwhile.

Anyone else remove their thyroid even though they felt mostly ok? I’ve also reached my deductible so I’m wondering if I should squeeze it in!😅

I’m newly diagnosed and just started the medication. I was fortunate and diagnosed about a month after I stated having symptoms. I only lost about 5 pounds. I don’t mind gaining that back, however, I don’t want to gain anymore than that. I feel like everyone talks about gaining. Has anyone not gained a bunch of weight? Thanks in advance!

Last night I read an article about hypo and hyperthyroidism, and it said that if you have Graves you're more likely to also develop other autoimmune issues. And it basically said that you already have Crone's disease, whether or not you have any symptoms! Do any of you have other autoimmune diseases?

I got diagnosed with Graves Disease in 2011 and TED shortly thereafter. I wanted to share something that helped me when I had Graves’ thyroid eye disease because I don’t hear it discussed nearly as much as medication.

When my eyes started changing, my doctor had me take 200 micrograms (mcg) of selenium per day for about four to six months. My eyes eventually retracted back toward normal, and I personally had a very good outcome. Zero recurrence.

Years later, I learned that my doctor wasn’t just recommending some random supplement. Selenium has actually been studied in people with mild, active thyroid eye disease, and clinical guidelines recognize it as an option for certain patients.

That does NOT mean selenium will treat every case of TED or that anyone should substitute it for medication their doctor recommends. Moderate or severe TED can require steroids, biologic medications, surgery, or other treatment. Selenium can also be harmful if you take too much.

But if you have early or mild thyroid eye disease, it may be worth asking your endocrinologist or ophthalmologist if selenium is appropriate for your type and severity TED.

Also, the dose is in micrograms, not milligrams. I took 200 mcg/day.

I’m sharing this because I was surprised to learn how many people with TED have never even been told that selenium is an evidence-based option for some cases. My experience obviously isn’t proof that it will work for someone else, but it may be a conversation worth having with your doctor.

I am a 27 year old female with graves. I’ve had it for a year and my numbers have been less than stable. I was on birth control to avoid any pregnancies and just got told today in an ER visit that I am pregnant. I am having a lot of mixed emotions and wanted to hear some experiences with pregnancy and graves. Thank you.

I saw two different ophthalmologist and let them know that my eyes are super swollen, and most importantly, my eyes don’t close all the way.
Im nearly blind in the morning, squinting due to photosensitivity and tearing for 1-2 hours upon waking.

Two opthalmologists refused to medicate me, told me to use eye drops, while my eye condition gets worse. I was told I was at the borderline of inactive/active thyroid eye disease before they choose to medicate and the ophthalmologist felt uncomfortable giving me medication. Instead I was referred me to a occuloplastic doctor for which there is months long waitlist.

I brought a complaint up to Kaiser‘s member services and member services director did not deem this an emergency to expedite an appointment. So I am left to suffer for months before an appointment with someone who might help.

I’m suffering a lot and I’m concerned that my cornea is or my eyes can get damaged from drying out and not being closed all the way especially overnight.

I was sitting watching TV and my mouth just started tasting like blood. I grab a tissue (I've got a cold), and it was coming from my gums.

Is this a Graves thing?

Does anyone have any tips or tricks for dealing with high heat weather and this beastly condition? I’m in Disneyland (Cali) this week and the temps are around 37-40 degrees Celsius (100-105F), and my previously controlled symptoms are flaring in a way I’ve never experienced before. Hot flushing, profuse sweating, tachycardia/palpitations, which is all leading to feeling awful most of the time.

I’m drinking water and Powerade like it’s going out of style, but I don’t really know what else I can do other than go inside when I can and take it easy.