u/ifyoulikepinahcolada

Mental health/ nervous system

I’m not sure if I didn’t do enough research or what but I had no heads up that I’d be dealing with what I’m dealing with.

Long story short, was on PTU, 200mg daily.

Elevated liver tests and t3&t4 going lower end of normal, tsh still <0 , started not tolerating meds mentally and having panic / insomnia.

I email endo to beg she cut my dose, she cut dose to 100mg and gave some blood tests to do in a few weeks. No further communication

I have no idea how to cope with the adrenaline surges, panic, fear, doom, insomnia what ever the hell just happened and now seems to be the reg ?

Do we get on medication for this? Is that not my endos responsibility? Or do I go to a gp?
Does it stabilise? Seems really weird to be suffering in silence. I was taking drowsy antihistamines to try to sleep but it’s not working

Basically what did you do? What is normal procedure in this situation?
Did TT or RAI stop this?
I’m just shocked that something so debilitating wouldn’t come with a huge warning sign or that treatment wouldn’t be more gentle/slow

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u/ifyoulikepinahcolada — 3 days ago