u/NekoBlueHeart

This is my second post today but posting anyway. My Graves disease was onset around puberty when I was a kid. I remember being in middle school and my hands were so shaky, I couldn't open my locker. That was when I started seeing an endocrinologist and taking meds. I can't remember how long it took, but by highschool I was off meds and fully in remission. I had a very short relapse of symptoms around age 20 where I was briefly re-medicated. Then I was in remission for 20 years until now at age 40.

My endocrinologist from way back then always told me my Graves would come back if I got pregnant, but that was not the case for me. It didn't come back until my youngest child was over 4 years old.

Anyone else back after a crazy long remission? Were you able to get regulated with medication?

My Graves disease came out of remission after 20 years unmedicated, so I didn't have an endocrinologist anymore.

Where I live (US), it's a 4 month wait just for telehealth. I had to beg my primary to put me on meds, but I'll have no idea if it's the right dose until my appointment in July (that I scheduled in March).

I got a referral to another place that might be able to see me but after 2 weeks of calling every day, they haven't received the referral (my provider sent it twice). I'm giving up on that one since at this point they will schedule me after my July appointment anyway.

I keep asking myself, do people just die waiting to be seen? Do they end up in the ER? This doesn't seem right.