Dysautonomia - Best Treatments?
I suffered a concussion 2.5 years ago. During the first year, I did vision OT (primarily for nystagmus) and vestibular PT 2x per week for 5 months. Toward the middle/end of PT, my heart rate started spiking when I did a lot of jumping, quick turning, and ups and downs. I’d quickly feel winded after doing certain exercises involving these moves (generally, I am pretty athletic). Over the months, my symptoms have changed (e.g., from eye strain/pressure headaches to brain fog that’s affected my work).
Recently, the dysautonomia is most prominent. A couple times I’ve tried to do what would otherwise be a moderately intense workout, and my HR goes to the 170s-180. Then it stays elevated for several days (80-100 when my resting is low 60s). My max HR is ~183 when calculated based on my age.
If you’ve dealt with this, what types of specialists and/or services helped you get back to normal? And perhaps there are multiple things I can be doing beyond physical efforts like functional neurologist, acupuncture, etc.? (I know generally how this is addressed via exercise, monitoring HR and gradually increasing intensity of activity. Even for that I’d like professional guidance/oversight.) I have an appointment with a neurologist who specializes in PCS, but it’s not til late July (made months ago). THANKS for any input!