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u/Koala__Robot

r/Scholar r/HPPD r/covidlonghaulers r/tinnitus r/BrainFog r/visualsnow
Subscribed to Visual Snow Syndrome™ Premium since childhood. No cancellation available.
▲ 62 r/visualsnow

Subscribed to Visual Snow Syndrome™ Premium since childhood. No cancellation available.

u/Koala__Robot — 19 hours ago
▲ 13 r/visualsnow

Let's Give Visual Snow the Wikipedia Page It Deserves 💫

Picture this: Someone Google's "Visual Snow," lands on Wikipedia… and gets bored by a page that reads like it was written in 2016.

It's time to fix the English Wikipedia article on Visual Snow Syndrome.

Why ?

  • New science is happening
  • Let's give more answers
  • Better info = less stigma, fewer "it's just anxiety" vibes
  • This is OUR condition — we get to define what it means.

You can:

  • Drop in recent study citations
  • Update those dusty old stats
  • Make dense jargon readable for regular humans
  • You can also create images or GIFs that accurately represent what VSS looks like — static, palinopsia, halos, starbursts, photophobia. Visual representations are powerful.

And improving the English page with a solid, well-sourced, comprehensive foundation means better translations into other languages on Wikipedia. So every citation you add, every paragraph you improve, could be the reason someone in another country understands what they're seeing.

https://en.wikipedia.org/wiki/Visual_snow_syndrome

u/Koala__Robot — 8 days ago
▲ 1 r/visualsnow

k2 mk4 : Outdoor a bit better, but not indoor, why ?

I started K2 MK4 a week ago without any expectations, but for once with a supplement, since I take it, I feel like my visual snow has improved a bit in outside light. The visual snow and blue field entoptic phenomenon are not as much there as before when I look for example at a blue sky. It's still there of course, but there's a feeling that it's not as aggressive as before.

But in darker environments, the visual snow is literally the same and as much as before. How does this make any sense? And the tinnitus is the same too

I can't find any answer about it, so maybe some people have an explanation why there is a difference of improvement outdoor vs indoor ? Or it's not possible, I am just lying to myself and there is no change ?

reddit.com
u/Koala__Robot — 9 days ago
▲ 5 r/visualsnow

[French] Thesis - Visual Snow Syndrome and Transcranial Magnetic Stimulation: What is the Place of rTMS Treatment for Visual Symptoms and Psychiatric Comorbidities in Patients with Visual Snow Syndrome?

dumas.ccsd.cnrs.fr
u/Koala__Robot — 14 days ago
▲ 2 r/visualsnow

Born with visual snow and brain fog — anyone else relate ?

Hello hello,

I've had visual snow for as long as I can remember, and the same goes for brain fog. I strongly suspect that my brain fog is directly caused by my visual snow syndrome.

If you're in the same boat — having both since childhood — please let me know you exist and share a bit of your story if you'd like.

The hardest part about having both since childhood is that you have no frame of reference. You grow up assuming everyone sees static in the dark. You assume everyone walks around with a foggy mind. I took years to put a word on the brain fog, then more years to discover visual snow syndrome exists, and then even more to connect the two together.

I'm just looking for people who've been through the same thing — the confusion, the delayed realization, the slow process of putting the pieces together. If that's you, I'd love to hear your story.

reddit.com
u/Koala__Robot — 16 days ago
▲ 3 r/HPPD

Discord francophone pour HDDP et le syndrome de la neige visuelle 🇫🇷

Salut salut,
Pour favoriser l'entraide, le partage de connaissance, recommandation de docteurs et peut-etre pousser pour une meilleure reconnaissance en France et autres pays francophones,
voici un Discord nouvellement crée sur le sujet du HPPD et le syndrome de la neige visuelle :) https://discord.gg/KPfnTjYV7

https://preview.redd.it/yli3ml6z1ogh1.png?width=1080&format=png&auto=webp&s=116e39a52dfa3a2ee488a8080f26be4d02d6140c

reddit.com
u/Koala__Robot — 19 days ago