Officially diagnosed!
I'm officially h-EDS, including an in-the-works written report by my doctor that I will be able to take to social security! The reason I'm so happy is that I was super anxious about this appointment, after the customary round of dismissal from other doctors, something I know probably a lot of you experience too.
However, not this time! It was such a relief to have a good experience, not feel dismissed or looked down on or not understand what the hell is going on, and not needing to do a hundred tests before we get to the obvious conclusion. I really thought that at least I would be asked to test with a geneticist that I don't have other kinds before giving me "the label" for heds.
There's one trick I started using recently: after my autism diagnosis I started bringing a written sheet with everything I want to say, symptoms and meds, and I start the appointment by full on saying "I'm autistic and here's my sheet". It seems to help sometimes.