▲ 22 r/CFParents+1 crossposts

Unborn Baby Diagnosed with CF

My unborn child more than likely has CF. Both his father and I were carriers of the 508del gene and didn’t know. The baby is already showing signs of bowel issues in utero including meconium ileas.

Neither I or his father have any familial history or CF. I don’t even know what I’m looking for here. I’m just scared, not for myself but for the baby.

I am looking to get onto trikafta myself for the remainder of the pregnancy. I just wish we knew about it sooner and could’ve intervened sooner or done something to save our baby from having to go through this. I don’t mean to seem insensitive if that seems offensive. I’m just at a loss. I just want my baby to be okay.

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u/Lala816 — 4 days ago