I can't keep doing this
I was diagnosed with cdiff on 7/23, ended up in the ER three times. Prescribed Vancomycin 10 day course, symptoms resolved, finished it.
10 days after finishing Vancomycin, my symptoms came back. My doctor sent me to the ER for fluids, meds, and testing. Was obviously positive for cdiff again. They tried to rx fidaxomicin, but medicaid wouldn't cover. Sent home on Vancomycin taper this time. My symptoms have gotten worse since starting the Vancomycin 4 days ago. I'm having bad abdominal pain again, passing hard round balls of stool mixed with bloody mucus. The pain has been bad for the last 18 hours, keeping me from eating, drinking, but I have been forcing myself to take the antibiotics and some daily meds.
I spoke with my doctor's office this morning, and she wants me to go to the ER again. This will be my 5th time in the ER in the last month. My fiancé is at work and not answering his phone, so I am going to have put off going to the hospital until tonight.
I just discovered this sub and have been researching what not to do.
Apparently I'm not supposed to take pantoprazole, but no one told me this. I take it regularly everyday.
I was also told that since I'm taking naltrexone (for appetite and food cravings), they can't give me IV opioids for the pain at the hospital. I stopped taking it during my first infection, but stupidly restarted it when I was feeling better. It didn't occur to me to stop taking it with this infection, since symptoms were supposed to improve, and I'm a complete idiot and took it last night. So no pain meds for me! I also can't take NSAIDs since my gastric sleeve surgery.
I am glad that I have medicaid right now, or we would have no money at all after these bills.
But I'm exhausted. Didn't sleep at all last night. So much pain. So thirsty.
I'm tempted to not go back to the hospital. I feel like the staff is getting tired of seeing me, and it's making me feel so guilty and embarrassed. I know my doctor wants me to go, but I feel like my fiancé is getting so stressed out dealing with me. He's at work right now, not answering.
I'm just so done with this. I can't take this on top of my usual pain. I don't know what to do anymore. I'm so tired.